[erobinson219]

#1019656

What is recommended to proivde to family members to teach them about what graves disease is? I need something that is thorough enough that describes what it is, symptoms, treatments, etc. Not too short either. Somewhat educational – not just high level overview.

My family members have gone from thinking I was just somewhat hypcondriac to now concerned I might be dying. I have changed so much in how I look in the last year that I think i scare them. I do appreciate their concern but would really like to provde some written material to them.

[Jake_George]

#1073149

If our home page link is working (we are redoing the home page) there is a link to information about Graves’ disease.

I may also suggest you buy "Graves’ Disease In Our Own Words" as it has a few chapters on family and how to deal with us as well as easy to understand language on what Graves’ disease is and how it effects us.

[DianneW]

#1073150

The GDF new website isn’t functioning quite yet.

There are some brochures about Graves’ Disease and hyperthyroidism (and treatments) at the American Thyroid Association website, http://www.thyroid.org If you don’t like those, there are some guides you can print out at the Thyroid Foundation of Canada’s website:
http://www.thyroid.ca/

[npatterson]

#1073151

This is a subject we have been talking about a great deal since the conference in October. How to tell, what to tell, when to tell. We (GDF) have a number of bulletins, which will eventually be available on the web. For the time being, they reside in my computer and file cabinets, in California and in Buffalo. If you will contact me, I will send them to you. "nancyngdf@bellsouth.net" . I can send them via e-mail, or postal services.

If any of you have been really successful in telling your family, please let us know how you did it. We are trying to develop something for explaining what is going on to children.

My personal favorite is to have a "family meeting" (without telephone, cell phone or TV) and answer their questions–one at a time–so that everyone hears the same thing. This would imply that you are well-informed, and that’s what we try to do for you here.

[Marpo]

#1073152

I made a coloring book for my young grandkids and a friend of mine in Ireland kids. I will send you a copy in the mail Nancy ” title=”Very Happy” />

[npatterson]

#1073153

What a great idea! I look forward to receiving it.

[hwalter]

#1073154

Marpo wrote:I made a coloring book for my young grandkids and a friend of mine in Ireland kids. I will send you a copy in the mail Nancy ” title=”Very Happy” />

Could I please get a copy of this book too? It sounds wonderful and will help my children understand what is happening to their mommy! please email me at hollyrw@earthlink.net and I will email you my address.

[Author]

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