[Anonymous]

#1042024

I haven’t developed TED yet, and thus haven’t had to encounter surgery such as you will have, but want you to know that I will be thinking about you and wishing you well. I’ve read a lot of posts from people who have had different kinds of eye surgery and it seems as thought they have great success with it.

Good luck and let us know how it goes. I’ll be thinking about you Monday.
Sarah

[Anonymous]

#1133410

Hi, It has been awhile. I had RAI in September of last year and only just last month my T-4 and finally my tsh have entered the normal range. It has been a long road of continued systems problems, and somehow now that I’m in the proper ranges, I thought I’d feel better, but no such luck. Here’s my question. Originally my thyroid-eye doctor told me I had to be on synthetic hormones and in balance before I could have eye-lid surgery. As soon as he saw my T-4 was in the range ( last month), he said that was the important issue and I was now free to get the surgeries. My internist, treating my thyroid, fully expects both my T-4 and tsh to go out of range (hypo) by my next blood test on April 18th. Everything I’ve read, indicates that my eyes may experience a remission and even improve some, and that is why eye surgeries are delayed until the thyroid is in balance. However, I just assumed that this applied to eye lid surgery too. Even with my insurance, I’m looking at $750.00 and I’d hate to have the surgery, only to have my eyes change and need it again. But the bigger concern is that I don’t want to mess up my eyes by going into this too soon. I currently have no vision problems. I’ve ordered the eye lid surgery bulletin, but my eye doc is asking me to book surgery. Anyone have any info to share with me? It would be appreciated. thanks, Punkie

[Anonymous]

#1133411

All I can tell you is that, if it were me, I would hold off on the surgery until you have STAYED at a stable level of thyroid hormone, at least for a few months. Many of the eye symptoms can change over time, and the only way to truly know that your body has had some opportunity to heal is to have remained at a normal, stable level of hormone for some period of time.

As you say, sometimes the surgery can stimulate the antibodies to begin more activity, and that’s not something I would want to risk. Once your levels have remained stable AND your eyes are stable (not perfect, but not changing), then I would go ahead and do surgery. It would be an awful shame to go through it and have things change again.

That’s just my two cents, and bear in mind that I have not had TED involvement to any serious degree (dryness and blurriness are my only symptoms). I just know what I’ve read.

I hope that helps you a little!

-Ski
NGDF Assistant Online Facilitator

[Anonymous]

#1133412

Hi,

It’s been such a long time, that you won’t remember me….

I’ve had the decompression (2003), strabismus surgery (2004) –
and now I’m due for fixing the eye-lid retraction – but I don’t know what it involves and could find very little on the net. Could
you tell me what to expect please?

So far, everything went well.

Thanks so much,
Suzanne

[Anonymous]

#1133413

Hi,
My name is Diane, I noticed that you had the decompression
surgery a few years ago – I had mine almost 2 months ago and
my eye (Ihad only 1 done) is still giving me alot of pain -the Dr. tells me it’s from dry eye – I’m not sure that I believe him, since
my eye never felt like this before the operation. Eye drops do not help
and I have to work on the compter almost 9 to 10 hours a day…
Do you remember having such pain-sometimes it feels like I have dirt
in my eye or hairs it’s driving me crazy………..

[Anonymous]

#1133414

Diane,
I just had the decompression (May) and eyelid surgery (July) done and after the eye lid surgery alot of the discomfort went away. I was so scared going in for the eye lid surgery that they gave me valium.. it is soooo soooo much easier than decomp and the recovery time is so much shorter.. I actually woke up in the middle of surgery and started talking to my Dr… needless to say I have one scar that is pretty funny looking.. I didn’t feel a thing by the way when I woke up… They put “caps” over your eyes so that your eye itself can’t be damaged.. which is what I saw.. I woke up and said “holy **** that light is bright” I scared everyone in the room…

Honestly though I am so greatful that I had the lid surgery… I didn’t sleep more than 5 or 6 hours a week from May to July because of the pain and not being able to close my eyes.. I tried covering them but it would give me panic attacks to wake up and not be able to see.. They hurt so bad and I would “cry” all the time… I’m the Internet Technology Manager for a Car Dealership so my entire day is spent at the computer.

Do it… It is worth it in so many ways!

Errin

[Anonymous]

#1133415

Hi,

I’m having eye-lid surgery tomorrow, so your mail was there first on the list like a God send. Thanks for the encouraging words – I am
more confident now.

Thanks again!
Love and light,
Suzanne

PS Please think of me…

[Anonymous]

#1133416

Good luck, Suzanne, and when you are able to give us an update.

Diane B On-Line Facilitator

[Anonymous]

#1133417

Suzanne,
Saying prayers for you sweetheart!

[Author]

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