[marta1234]

#1018347

I am currently 7 weeks on Methimazole and recently my free T3 and T4 felt into normal range. . After that my endo reduced MMI from 30 mg to 10 mg and told me to stop beta blockers. I decided to wean off on betablocker by taking smaller doses for two weeks.
Since dose reduction I started to experience excessive hunger to the point that there is no enough food in the world to stop it . It is more than a hunger, it is a life-force that makes me to eat even when I don’t have appetite It doesn’t happen every day and it comes with different intense . Previously, once I was diagnosed, I experienced unusual nausea and just a bit hunger from time to time . My endo run blood sugar test for me but it was all fine. that has just changed to hunger now – I lost a lot of weight with nausea, still didn’t gain anything. I am concerned that it appeared when my GD symptoms should be disappearing.

I searched our forum and I noticed that many of Grave Disease patients experienced insane hunger as well. Can you please let me know how long it lasted? Did you noticed that it comes after you eat specific food ? Did it stop after gaining weight? Is it specific luck of nutrition? Could it be hormone related?

[Kimberly]

#1064173

Hello – You might mention this issue to your doctor. Physical hunger is definitely associated with hypER. However, it sounds almost like your situation is more of an urge or craving, which *could* be associated with being deficient in a particular nutrient.

By the way, even though my thyroid levels are in the normal range, it seems that my my "hungry" meter has been turned waaaaaay up since my diagnosis almost 3 years ago. It means that I have to be extra vigilant in tracking my calorie intake, which is a real pain in the you-know-what!

[marta1234]

#1064174

Thank you Kimberly for sharing your thoughts.I will have my endo appointment in 2 weeks- that is the closest time they were able to squeeze me .
It’ has been 2 weeks after dose change.
I expected that I am back to hyper place, so I got new blood tests ordered last week , that shows that TSH moved to the bottom of normal range, T3 is in the middle of normal range and T4 is at the bottom . I think those are great results, they T3 and T4 move down a bit since dose change however I feel more and more HypER. My pulse is moving up ( I am weaning off Beta Blocker so on the day without BB is 80-95 with BB is 70-75 ) , I still have stomach problems, and I have my nervous moments through the day more and more intense, . Today I had one of those days that I felt nervous for 5 hours. When it is going to end? Am I the only one still very sick at this stage?

[ewmb]

#1064175

When I was undiagnosed, but knew something was very wrong……. I ate about every two hours which was hard. I got tired of food and I was sick enough that it was hard to get to the kitchen and make something good so I ate out of boxes and the fridge when my husband didn’t leave me something good. When I was on atds and my levels got more settled it stopped. When I went hyper again after getting off atds to go toward RAI it came back some. I am trying to find my golden dose of levoxyl about a year after going hypo after RAI. I haven’t experienced that extreme hunger again but I do have days when I really feel that I’m not getting enough calories to be steady. I am coming down from a high T-4 right now on a lower dose of levoxyl. My weight has been up about 25 lbs since I went hypo on the atds about two years ago. I hope that when I finally get settled I can start losing some weight. I have lost about 7-8 pounds since going back on my weight watchers but I can’t seem to break that level, yet. When you say nervous, do you mean anxious? I had some real panic attacks when I was really sick. I think it can be that way if you are really hyper. I still have some bad mornings……

Hope you feel better soon,

ewmb

[marta1234]

#1064176

Yes, still feel nervous anxious everyday for couple of hours. It is feeling that I used to have before exam or when boss called me for unknown reason.
Before it was understandable and short but now it gets me always in the morning and last way too long, hours…. It could be one of the reason why my stomach is sick as well.
Is it possible to have such a long attacks still at this stage?
I lost a lot of weight and I still didnt gain anything back after weeks on MMI. I am hoping once I gain some weigh hunger will go away. I am eating every 2 hours as well and I am sick of food. I dont have appetite as well. I miss those days when I had great appetite , I struggled with extra pound, It sound very ironic now , but I miss those normal days

[Kimberly]

#1064177

Hello – The anxiety issues *usually* subside once our thyroid levels fall into the "normal" range. Perhaps your body is reacting to weaning off the beta blocker…but I would definitely ask your doc about this.

I would mention the nausea as well, as this can potentially be a side effect of the meds.

If you are underweight, it’s possible your hunger is simply a result of your body "prodding" you to keep those calories coming in…but again, that is worth mentioning as well.

Hopefully, you can get some answers at your next visit!

[marta1234]

#1064178

I would like to ask your opinion about beta blocker then
II was on Betablocker Atenolol 25 mg before, once my level stabilized my endo told me to cut betablocker cold turkey since he said it was a small dose.
I wasn’t able just to stop it so I decided to take 12 mg every second day for two weeks , Today was my last day and I am not sure how I am going to survive without it. Like I mentioned before on the day without BB is 80-95 with BB is 70-75. I still feel nervous, I have high pulse. What is the best way to wean off it? Is it ok to continue for longer? I am checking my blood pressure daily and it stays in normal range since the beginning.
While I am dealing with GD I am experienced unusual pattern I am very sick- anxiety , higher pulse nausea and hunger till afternoon only and then at night time I don’t have Graves. I have never , ever experienced symptoms in the afternoon. I tried to explain it, that at the end of the day my body is in “ relaxed” mode , but it is not like this. I put a lot of responsibilities, household tasks for afternoon time since I am more comfortable.
My endo doesn’t understand it and doesnt have the answer. To change it I started to take MMI dose 3*10 daily and beta blocker at night time . It didnt change anything. I had and still have the same " difficult mornings" and great afternoons for 3 months. Any thoughts?

[Ski]

#1064179

The beta blocker, for us, only serves to mask our symptoms, it doesn’t actually treat anything, so once our levels begin to approach normal, it is very typical that the doctor will remove the beta blockers from our medication regimen. If your heart rate is not dangerously high, there’s no sense in taking something that is just a band-aid for symptoms. As your levels come to YOUR normal point, and remain there, then your body will begin to heal and you will *start* feeling better all the time. By gradual, painfully small degrees, but it’s progress. The fact is that hyperthyroidism has wreaked havoc with our body, has affected it in ways you cannot even imagine, and it continues to do its damage as long as our levels are out of normal range. What we accomplish when we reach normal, stable levels is to provide a stable platform for our body to begin recovering from the onslaught. So your REAL normal, where you feel truly well, all the time, is further away than simply getting into the normal range.

Weaning from the beta blocker CAN have a sort of "rubber band" effect, during which you experience the precise symptoms you’ve been treating, in an even more exaggerated fashion. That subsides, and should do that rather quickly.

[Bobbi]

#1064180

Think of hyperthyroidism as a Hurricane Earl in your body. Getting to normal levels of hormone is like having the winds subside. Are things immediately normal after a hurricane? Absolutely not. There is damage that needs to be fixed. And you cannot start fixing the damage while the hurricane force winds are still raging — you have to wait until they’re gone. It’s an analogy that can help you to understand why you don’t feel "normal" when you hit normal levels of hormone at first.

[marta1234]

#1064181

Thank you a lot!
There are still difficult weeks ahead of me. I decided not to take beta blocker any more, so may deal with high pulse and more intense anxiety now. I will have endo appointment in two weeks, and I will have my blood tested after 4 weeks of changing dose. I hope it will be a good picture for him to see how my body is stabilizing.
With positive attitude I am recovering from hurricane now and I will not let it to create more damage ” title=”Very Happy” />

[Author]

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