Viewing 8 posts - 1 through 8 (of 8 total)
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  • JEH
    Participant
    Post count: 33

    Buttetin 34 on this website is a fascinating discussion of the wide-ranging symptoms of Graves and how it affects the person biologically and psychologically. I was diagnosed with Graves in my 50’s and was told by the doc that chances were good that I had had subclinical thyroid disease all of my life. For a long time I thought many of my cognitive problems were the result of the abuse I suffered as a child. However Bulletin 34 has brought all that into question. It may have been my thyroid all along.
    It may be the case for many Graves sufferers that the symptoms cut across so many disease conditions that it is hard to sort it all out. I guess what’s really important, though, is what we choose to do about the Graves. What’s in the past is over and done with. Getting the Graves treated effectively is what is most important for me.

    Kimberly
    Keymaster
    Post count: 4294

    Hello and welcome – Thanks for sharing your story…so glad that you found this article helpful! You might be interested to know that the researchers who did the original study are now working on updating the data. You can read more here:

    http://gdatf.org/news/new-survey-on-graves-disease-please-participate/

    Take care!

    Raspberry
    Participant
    Post count: 273

    I’m confused what where is Bulletin 34???

    JEH
    Participant
    Post count: 33

    Bulletin 343 can be found here:

    http://www.gdatf.org/about/about-graves-disease/patient-education/whats-wrong-with-me/

    See the full web address above to find other patient education bulletins.

    JEH
    Participant
    Post count: 33

    Bulletin 34 can be found here:

    http://www.gdatf.org/about/about-graves-disease/patient-education/whats-wrong-with-me/

    Follow the progression of the web address above to find other patient education bulletins.

    Raspberry
    Participant
    Post count: 273

    Thanks! That’s a great bulletin I just didn’t know it was #34 to me it’s the “what’s wrong with me” article, really great stuff. I saw other ones I’ve haven’t read that look good so it worked out!

    And welcome JEH, I can relate to your struggle because I too suffered some variety of thyroid problem (probably Hashimotos) for many years before it was sorted out. The one good thing about having Graves is the doctors take my thyroid issues seriously now. I hope you get the right treatment from here on out.

    SueAndHerZoo
    Participant
    Post count: 439

    Ugh, I’ve often wondered the same thing in the past year or two….. has my thyroid been the root cause of so many issues I’ve been dealing with for decades? I have had an irritable/spastic colon since I was a teenager (which has now turned into colitis) and I have had panic attacks and anxiety since I was about 15, too. Not much was known about panic attacks back then so I was pretty much alone with that and Graves was probably even less popular.

    My GP noticed I had a goiter about 35 years ago, but every time we ran blood work or did thyroid scanning, it showed “within range”. But now I have to believe that there was something brewing even back then and I wonder if I could have been spared the last 40 years of hell (and Prozac).

    Part of me gets really angry over “all the wasted time” but I guess I should just focus on being grateful that we FINALLY have found the answer for most of my health issues. Now I just have to live long enough to enjoy 40 years of GOOD health to counter the 40 years of undiagnosed issues.

    Thanks for posting.
    Sue

    JEH
    Participant
    Post count: 33

    I remember hearing all of my life about my paternal grandmother (who was a centenarian when she passed in 1989) having a goiter. No one ever said any more about it and obviously she had a long life even with it. But that’s probably where my GD came from. The autoimmune business comes from my mother’s family: Addisons, RA, etc. I guess it’s pretty much a mystery how all of that fits together. The good news is that it’s less of a mystery how we live with GD and protect our health. So glad there is as much knowledge as there is today about living with CD. And you guys are all a part of that knowledge base. Keep posting.

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