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  • Ski
    Participant
    Post count: 1569

    <img decoding=” title=”Very Happy” /> I smile because I met someone rather similar along my journey ~ a new co-worker who told me she had Graves’, shortly after I was diagnosed, and it turned out I already knew more about it than she ever had or would. I was also somewhat perturbed that this complicated process was going on within her, and she knew very little about it. After a few conversations I figured out her course of treatment, but it was pretty incredible to hear what her impression was about the whole process. I gave up trying to help, because as far as she was concerned it was no longer an issue. She thought she had come to the best point possible, and that’s fine. I can’t say for sure what’s happening with your friend, but I can tell you that there are many, many thyroid disease patients who have an incredibly fuzzy idea of what’s gone on with their bodies. I think for some people it goes "too far" for them to truly absorb, and when they’re not well, it just make it harder to be interested in anything other than their desire to feel better.

    Ski
    Participant
    Post count: 1569

    And by the way, anyone reading these messages belongs in the "knows stuff" column, no matter what!! It’s complicated information, it may take you a while to understand it all, but the mere fact that you’ve gone through the process of looking for information means you are paying attention, and it will serve you well as you start getting better.

    Ewenme
    Participant
    Post count: 62

    I met a woman this week who told me she’s had Graves disease for ‘years.’ She went on to tell me she had major surgery of some kind (didn’t say what) and that is what caused it. I asked her, ‘so, do you still have your thyroid?’ She said ‘yes’ and from what I could gather she is on synthroid <img decoding=” title=”Confused” /> . Doesn’t sound like Graves to me, but I didn’t dare disagree–had just met the woman. I was disappointed because thought she would be someone I could relate to.
    FYI, I have had Grave’s since March of this year, and am on the ATD roller coaster right now. Anyhow–I found it very annoying, maybe because I’m on the hyper end right now.

    Ewenme
    Participant
    Post count: 62

    Thanks, Ski. It makes me feel good to know somebody understands–which is why this board is so beneficial. I will be seeing this woman again, so maybe I can find out more, if only to satisfy my curiosity. After I spoke with her, I thought I should’ve asked if she’d had RAI. She would still have her thyroid if that was the case and she could be on synthroid, if that was the case. Perhaps I jumped to conclusions–will update when I have more info.

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