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  • azroses2322
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    Post count: 35

    I have struggled with this disease for over 2 years now and have been regulated on replacement thyroid since Dec. 2007. According to my doctor my thyroid was destroyed by the RAI. My physical health took such a hit after being hyper (thyroid storm) and then extremely hypo before getting on replacement, that it has taken a long time for me to regain my physical strength. I still have trouble walking too far, I tire easily and still have some trouble climbing the stairs (I am still slow). I am about 90% back to pre-graves stamina and am beginning to be able to do more. I travelled last month for the first time in 2 1/2 years by air. The walking thu the airport took it’s toll and I had lots of leg cramps after each end of the trip, but I felt so good getting out and away. As I do more and go further, and can make it through a 16+ hour day (instead of 8-10 hour) without having to rest, will my body demand more replacement hormone?? In addition, up until now I have been undergoing a series of multiple eye surgeries (6 of them since Mar. 2008 until now). So each time I would recover, it was time for another surgery and they have been taking a toll on my strength (and my body since they take me off vit. for a long time with each). I may be done with them now and am ready to resume a more active life — I hope. What do I and others living with Graves in this phase need to know? I am just entering the senior cit. years (over 60) but am not retired yet — my lifelong career is as a technical professional 24/7 — so working through the ups and downs of this disease has been a challenge — and my career has been my counter-balance — no matter how hard it got to see and how tiring and stressful it got.

    Ski
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    Post count: 1569

    All I really know is that changes in your activity level can trigger a change for your needs when it comes to replacement thyroid hormone. I would suppose that means you need more when your typical daily activity level rises significantly, but leave that to the blood tests to figure out. Just knowing that it’s possible will make you a better advocate for yourself ~ we should be getting our thyroid levels tested at least annually, even after treatment and successful stabilization, for just that reason. Other things can affect our thyroid hormone needs as well ~ weight and age, for instance ~ so it’s always a good idea to have a handle on where you stand, no matter what.

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