[amyl]

#1073516

Hi,
I live in Indiana but I took my son to the Mayo clinic in Rochester Minnesota. It was a long trip but very much worth while. My son had been incorrectly and treated by local doctors for Chron’s Disease. When he wasn’t getting better, I decided to take him to Mayo and they correctly diagnosed him in just a few days. When we returned home, I asked friends and co-workers for names of pediatric endocrinologists and then I researched their recommendations via the internet. Because my son was misdiagnosed for so long, I now rely more on my "mothers intuition" when making decisions about his care.
Good luck!
Amy

[erobinson219]

#1073517

Wow – thats’ very interesting. My son, who is 22, is suffering from a lost of gastrointestinal distress and is looking for help. He thinks it may be something like Crohn’s but has not been diagnosed with that yet. I wonder if it is related to the thyroid. I was pregnant with him when I first wad diagnosed with graves. Thanks for the Mayo recommendation.

[hyperm]

#1073518

erobinson219 wrote:Wow – thats’ very interesting. My son, who is 22, is suffering from a lost of gastrointestinal distress and is looking for help. He thinks it may be something like Crohn’s but has not been diagnosed with that yet. I wonder if it is related to the thyroid. I was pregnant with him when I first wad diagnosed with graves. Thanks for the Mayo recommendation.

HI

I had IBS for years and on several occassions had repeat tests for cealiac disease which is commonly found in thyroid cases

Good luck

,m x

[erobinson219]

#1019700

I am looking for a list of doctors that are highly recommended and experienced with treating Graves disease. I live in NJ so the greater NY area would be preferred but I would be willing to go further for the expertise.

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