[Jake_George]

#1071187

Yes you still have Graves’ disease and will for life. You are on replacement hormone to replace what the removed thyroid provided. Just as a diabetic has to take insulin when their pancreas stops working.

Both are autoimmune diseases that are for life. It is wise to watch for symptoms to being too hyper or hypo. We have a few brochures available for download on our home page at http://www.ngdf.org that provide a list of symptoms.

What is nice to know is that once you get on replacement hormone at levels you feel comfortable in, chances are on your side that things will level out for you and this will be a very manageable disease for you. We are only a click away for any questions and there are folks here almost around the clock willing to provide help or comfort.

[mamabear]

#1071188

I agree with Jake.

are you on replacement hormone? If yes or no it doesn’t matter, either way you should get your blood drawn and see what the levels look like. If you aren’t on it, you might need it. If you are on it you might need to be tweeked to a different dose.

Yes you will always be a Graves’ patient. AND your children and their children down the road can also have this as well. Maybe someone in your family had it and that is how you got it. It is not something someone talked about back in the day from what I hear. I’m only 35 and my grandmother was young and she never told us where it came from. 1st son had Hashimotos thyroiditis and so does his daughter. 2nd son has graves and so does his daughter. My mom didn’t have anything and I have Graves as well. But mom was diagnosed just a couple of years ago with Hypothyroidism. Mom is young too, she’s only 54. No one ever found out if it was grandmother or grandfather who had it. My guess was that it was her, she always acted crazy. I hate to say that in that way but she did and so did her sister. Mental issues that no one could explain because their mom was fine. Their dad died at an early age by car accident so we dont know about him.

Please make sure children (girls and boys) know that you have Graves disease and that it can be a factor in them having it.

[GrammyB]

#1019364

I have Graves Disease and had surgery to have my thyroid removed after my Doctor went months trying to regulate it, when my readings were finally within the normal range my thyroid was growing at such a rapid rate, I had to have it removed in November 2007. I have been told even though I don’t have a thyroid, I still will have Graves Disease. Lately I have been in a lot of pain and weak, am not sure if I should be concerned that this is a flare up or something else. If I still have Graves Disease, what should I look for as far as symtoms are?

[Kaeljia]

#1071189

Hey Jake, thanks for answering that one. I was baffled as to why the DR still related my blood work to Graves Disease. now I know.

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