[cathycnm]

#1072125

Hyperm – Here I am with my pharmacology book as my Friday night date. Diazepam can have withdraw symptoms after long-term use – it is usually panic and other related symptoms (some pts think they are relapsing). It is interesting that it is uterine cramping. I would let your doctor know – you might have a urinary of vaginal infection??? Beats me but that side effect is not in the book. Let us know. Cathy

[hyperm]

#1019510

Just a question to see if anyone else has experienced this

I had a thyroid storm over 2 months ago now and was placed on diazepam for the agggitation and anxiety. Some days I was having to take 30mg (spaced over 3 doses of 10mg during the course of a day) to have any effect. I am not some one who is happy about taking meds like this and therefore when I don’t need them I don’t take them basically.
However, on the days I do take the med now usually only 5mg per day perhaps in a bad day one in the morning and one at night. However, during the course of the day I start to feel a very weird aggitation and "nerves" in my womb. The following day if I don’t take any meds this feeling worsens and I really try not to take the diazepam because I feel as though this is just prolonging these feelings and I don’t want to be taking meds daily like this for the sake of it – however, sometimes the feeling at my womb becomes so bad that I succomb and take them.

I am not someone with an addictive personality and my GP agreed with me on that but she still highlighted that she would still need to "wean" me off them after I have my op. I am now beginning to wonder if there is a "physical" addiction going on and I am having withdrawals symptoms. Its the most peculiar feeling and it does all seem to be situated around my womb area. I remember our family friend who after a terminal diagnosis of cancer (recently deceased) being prescribed diazepam and she described something similar – which at the time I couldn’t comprehend but she mentioned frequently agitation at the womb area.

I would appreciate any advice or similar experiences while on diazepam.

Many thanks

M x

[hyperm]

#1072126

Hey thanks for looking up side effects.

Its def related to the meds – no infection present or anything and it can disappear for days – maybe I haven’t taken them in 4 days so the 1st day I don’t take them I have this feeling and then the 2nd it passes. If then I have a bad day and I take one in the morning by the night time I have the same feeling.

I think it is a form of anxiety and perhaps thats just where I feel the nervousness – you know how somedays you feel as though your stomach is churning well its like that!

Anyway no matter I am still here just was wondering if anyone else had something similar??

M x

[npatterson]

#1072127

What you are describing is not withdrawal symptoms.

I know you don’t like taking the medicine, but it works much better if you take it as it is ordered–meaning on a regular basis. For sure, tell your doctor about your specific symptom. Maybe you even need to change prescriptions–just for your sense of sanity.

You are looking at a really big event, and it would make anyone nervous. Try to stop being so hard on yourself. This is not a sign of weakness, fragility or a character flaw.

To borrow and paraphrase a sayinhg from Elaine Martinez: You have Graves’, don’t let it have you!

[cathycnm]

#1072128

Nancy – I agree. I have spent the last 2 weeks beating myself up too much over still being on remeron (one of the few antidepressants that actually helps my sleep – and insomnia is the first thing to go in any stress related illness). My doc wants me off of it because my cholesterol in high now and it can be a drug side effect. Which, I agree with. My endo also has me on a diuretic (Maxide) because I have too much calcium in my urine and that may be feeding the osteoporosis. I have concerns that the calcium in the urine is also a drug side effect from the parathyroid hormone I am on for osteoporosis (symptoms started the same week that I started the med). So – now the maxide to stop that. Maxide can also increase cholesterol. So – 3 more months and I am off the forteo. I want to see if I can get another urine calcium (go off the Maxide on a trial basis before hand) to see if the urine goes back to normal.

If I can get off both Remeron and Maxide, I think my cholesterol would go down. I honestly just don’t generally eat a ton of high cholesterol foods. I have my weaknesses, but not enough to cause this. The online calculators say my LDL needs to be 36% lower. Holy cow, batman – my diet is just not that bad. And I agree – I would prefer fewer meds than medicating more and more drug side effects. But I have felt badly that I am still on the remeron (1/3 of the lowest dose now) – still with a high T4 again – I want to wait until the game of thyroid level ping pong is a bit more stable.

Hyperm – I can totally empathize with your story of wanting to wean off and not being quite ready. I have felt that way about the Remeron for almost a year now. I just keep cutting the dose and seeing if symptoms surface again – if so, back up. My doc is aware that I am trying to wean off and she agrees with my plan. I just felt a little pushed the last time we talked about it – and I am also concerned with the cholesterol. But maybe it is the diuretic, anyway – who knows.

I got my eye plugs yesterday and like them so far – I can feel more moisture. One step forward!

[hyperm]

#1072129

Hey Cathy and Nancy – thanks for the advice! I know I seem to beat myself up over everything and try to be superwoman! My MIL is over from Japan and is shocked at how much I try to cram into one day or panic over something (trivial to her) but when you are over anxious with GD – well its a HUGE issue

I am just trying to take one day at a time and really cut back on the diazepam as some days its knocking me out and I can’t function like that with 2 children in the house. However, I agree that when the op time approaches I will be taking them like sweeties to keep me calm!

Thanks again! Much appreciated!

m x

[WorriedMum]

#1072130

Hi,

My daughter has actually been diagnosed as having Hashimoto 3/4 weeks ago but at the moment she is hyperthyroid (I’m not sure if there is a similar foundation for Hashimoto?) She is 13 and is finding the whole experience extremely difficult. She has been taking Tyrodyl for 3 weeks now but most of her symptoms don’t seem to be abating, although I understand that it can take a while for the medication to take effect? Anyway she has hyperventilation/panic attacks, her eyes roll in her head, she feels very cold, she sometimes "fits", she becomes unresponsive, they can last for anything up to an hour and a half. We having been working on breathing techniques and we recognise the signs of an oncoming attack now, I think we are now better at dealing with them (for the first two weeks her teachers at school would call an ambulance each time an attack occurred, I spent more time in casualty than out of it. Now I sit outside school each day and when she has an attack, I can go straight in and sort her out without the need for an ambulance).
This week, her attacks have changed, she was having an attack every other day, more or less. She had an attack last Wednesday and then she was fine until Monday when she had a small attack. Yesterday she had two attacks and today she has had three. We seem to be able to get the hyperventilation under control quicker and there is less kind of fitting. She still loses consciousness and her eyes still roll. But these attacks are different in that we can get her around within 20 minutes but then she is very sleepy and tends to slip back into them again, and then you have to start all over again. After the attacks she is very weak and can’t walk etc. and she has a headache, sore throat etc which you would expect. Her previous attacks were more dramatic but once she was out of it, the attack was definitely over. These attacks are gentler but she slips in and out of them.
When she has an attack we give her 4mgs of diazepam. My question is, could the diazepam be responsible for the change in nature of her attacks? And is this a good thing? She hasn’t been to school this week because of the frequency of her attacks, so to me it seems worse although the attacks are less violent.

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