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Hi everyone! So glad I found you
I got the word about 4:30 today when the Dr called and said it was Graves and he’s calling a prescription for Methimazole….I’m sure he said 20 mg twice a day, but from what I’m reading, that seems WAY high. Can someone give me a little feedback? I’m afraid the 100 mcg of Synthroid I took for 2 1.2 yrs may have had me overmedicated and cause the hyperthyroidism. Any thoughts on this? After reasearching, I think the synthroid dosage should have come down at some point, I don’t even remember bloodwork accept for my yearly physical. I’m wondering if my Dr literaly forgot about it and now says I have Graves. I’ve read nothing about going from NO thyroid function to Hyper in 2 1/2 yrs. Makes no sense to me. If any of you have dealt with this, please let me know, I am so frustrated!
Thanks so much!Kimberly wrote:Hello and welcome to the forum! We are fellow patients, not doctors, so we cannot comment on your dosage. We don’t have formal medical training, nor do we know your full personal medical history. This is an important issue, so I would encourage you to contact your doctor or pharmacist right away and make sure that you understand the doc’s dosing instructions.Please check back and let us know how you are doing!
Thank you for the welcome!
When I picked up my meds, I had a talk with the pharmacist, who told me hat he got the script on voice mail, was concerned by the dosage and when he tried to call my Dr back, the office was closed. He told me that he has never seen a starting dose that high, nor has he seen it for twice a day.He also knew I had been on Synthoid for quite a while. He told me that normally it is 5-10mg, occasionally 20mg, but never saw it given twice a day. This info I got AFTER I explained to him that I had researched the Mayo Clinic website and a few others, equally as respectable, and that I was sure the dose was too high. He obviously didn’t want to say much, until I told him this and then he let it all out He recommended I take 1 10mg and then call my Dr today. Unfortunately, I had out of town company come in very early and never got around to it, but will call in the morning. I took 10mg yesterday and today.
I didn’t expect a professional answer from ya’ll I was just wondering if anyone else had experienced anything similar.
Thank you for the response!I just wanted to say hi! No, we’re not doctors, but yeah, that does sound high! Of course, talking to your doctor is number 1. It is good the pharmacist helped you out, and I do think it’s important that we take as much responsibility for educating ourselves as much as we can so that we can question and understand. Everyone makes mistakes, but is finding another endo. a possibility? If he doesn’t order blood work and “forgot” about your Syntheroid (sp?), that’s not good. I was diagnosed 6 weeks ago and have been prescribed 5 mg. methimazole once daily. My doctor set up a standing blood work/ lab every 2 months for the 1st year of treatment- TSH, Free T4, liver function & CBC. I hope it all works out & you start to feel better soon.
Alexis
Hi All! Thanks for the responses.
I saw my Dr on Monday, had a long conversation concerning the dosage, my research and the pharmacist’s opinion. I didn’t want him to think I didn’t trust his judgement, I adore my Dr. He allowed me to say what I wanted and then told me that he had contacted the best Endo’s at UNC on a conference call for their opinions and recommendations. I found out that the reason the dose is so high, is because we have to hit it hard and fast…….I am scheduled for shoulder reconstruction surgery on May 18th and it MUST be under control due to the danger during surgery of Thyroid Storm. Thankfully, he was not upset at me and said he wished more patients would do research and become active in their treatments. He was also pleased that the pharmacist was concerned and had left him a message questioning the dosage.
So that’s it in a nutshell, I was afraid my Dr was getting forgetful, I’m amazed that he went to the trouble that he has to make sure I’ll be ok. I’ve had to wait for 2 months for this surgery, because he insists I see a top Orthopedist, who also happens to be HIS Orthopedist, I found out after complaining to Dr’s Wife/Nurse, when she came in where I work. He never told me, but she did. Makes me feel good that he insists on me having the best care.
As for whether or not he was testing me on the synthoid, after thinking about it, I don’t remember! I’m starting to think he did, but I’ve had so much medical problems in the last couple years, I don’t remember what was done
But I have to trust the man that has gone so far out of his way to make sure I get the best care possible. I feel so much better now!
Hugs to all!He does sound like a good doctor- listening to you and then willing to explain his reasons behind the dosage. I hope everything works out for you & that your shoulder heals and that your thyroid gets under control. Keep us posted on how things are going.
Alexis
Here’s a surprise, he’s NOT an Endo, he is my primary care physician/internal medicine specialist. I’ve been seeing him for 4 yrs since I moved here. At this rate, I may never move away just because of him! I was very healthy the 1st 48 years of my life and then BAM, it all went to h*ll in a handbasket! Now at 54, I have been thru a lifetime of medical issues in the last 6 yrs. Thinking about it seriously, yes, I would stay here just because of my medical care, even though I really detest this area, we have excellent medical facilities in NC, especially Raleigh, with UNC, Duke, Chapel Hill, etc People come from all over the country for care here. That will probably be what keeps me here. I moved here because my son and DIL live here and they kept wanting me to be closer to them, now watch, they’ll move somewhere else! LOL oh well, at least I’ll be where I have a great doc!
After being up until almost 4 am with the shoulder, I’m headed to work. I talked to HR and I’m going on Leave of absence, I just can’t handle the pain of the shoulder right now, can’t take the pain meds at night, keeps me awake. Can’t work without sleep. What a circle!
So I’ll be out for a couple weeks before the surgery and then a minimum of 6 weeks after on short term disability, thank God for my insurance. Having to battle Workman’s Comp for full pay, will only get 60% while I’m out without that. I’m sure it will take a lawyer, got that covered. I feel like I’m running in circles and not getting anywhere sometimes and yes, the depression gets to me too.
OK enough whining! go to work, get things taken care of, will try to end this week and start the LOA next week. At least I do have good medical care and I WILL get better!
Bless you all!
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