[jamielroberson1]

#1176990

HI! I just joined this site! I am so glad that I found this post. I was diagnosed with Graves Disease during my second pregnancy. I have been on and off medicine for about 4 years…trying to see if I would go into remission. Recently my dose of methimazole has been increased to 15mg per day. I feel like crap! My thyroid is enlarged and has ‘lumps’ all over it. My endo is pushing for the RI but I have so many reservations about that! I don’t want to have to have it again…if it doesn’t work the first time…also the eye problems that can develop are a little scary. I am 95% sure that I will go with a TT because that is what I want to do…but seeing all of your posts are very helpful! I am not planning on getting pregnant again but I just want it to be done!

[llevierge1012]

#1176991

Hello All, it has been a few years since I have been here, mainly because I had radiation uptake and although it took a year and it wasn’t a fun year I might add, we (my thyroid & me) finally went into remission. Well, now 6 yrs later I have some concerns, I have noticed in the past few months some side affects that have me concerned I may be active again. I try not to run to the doctor for every ache and pain but am thinking it’s time to get back in and get levels checked. Have noticed an enlarged bulging in throat not the typical noticable goiter but looking like a large adams apple type bulge. The increase in BM’s, s well as sweats mood swings, heat intollerence all similar to the typical issues we women deal with as we age have had me in denial. But as I stated I try not to run to the doc for each and every ache. Obviously I am going to get myself in and have a profile done but can anyone confirm whether or not this sounds like I am truly active again. ??

[Kimberly]

#1176992

@llevierge1012 – We’re fellow patients here, not docs, but if it was me, I would certainly visit the doctor to ask for a new set of labs. Many of the symptoms you describe are the more classic ones associated with hyperthyroidism. If your labs come back fine, then that will give you some peace of mind. But if you are indeed hyperthyroid again, best to catch this early before it progresses!

Take care – and please keep us posted!

[llevierge1012]

#1176993

Kim, I understand you are not doctors I just needed to explain my current situation to someone who would actually be sympathetic, needed to sound off, as I stated have been in remission for several years now and to think I may be active again is so frustrating.. It’s been almost 10 yrs now,,

Not really wanting to go back down that path, when I had the uptake my levels went through the roof. Even my doctor at the time said, well we are just going to have to wait and see what happens next. I went from 200% above normal to 500% then we went to beta blockers etc. the tremors the loss of sleep, I had almost forgotten how awful it can be. It took almost a year for things to get to “normal” which for me is so not the norm I am told. Regular MD’s have no clue they have no idea how I can function with such low T levels, I think the most frustrating part of it all is the whole attitude people have when you try to explain it to them, I have heard those infamous words “WOW you can’t gain weight, wish I had that disease” they have no idea.

Currently have lost approx. 10 pounds this month without dieting and I am now also experiencing alot of joint pain and aches but not sure if that’s related or not in addition to the other issues things are not sounding good to me at the moment

Tried to find a doc on healthcare website but the closest one according to them is 25 miles away. My original Endo moved out of state so I have to start all over again………

I have never had any of the eye issues so I guess I should consider myself lucky..

[Kimberly]

#1176994

Hi Lori – The significant weight loss is also a major red flag. If it’s going to be a challenge to get in to see an endo right now, your general practitioner should be able to order a basic set of labs for you. TSH, Free T4, T3, and antibody testing (TSI or TRAb) will give you a better indicator of what is going on. I would really encourage you to do this ASAP.

You might also check out the “Looking for a doctor?” thread in the announcements section at the top of this forum, as we have several other search engines that you can use to locate doctors by city/state/zip.

Take care!

[Author]

Posts