Gosh, I sure am sorry that you feel this lousy. No apologies ever needed for the length of your post. As you said, the list of symptoms represent hyPO and hyPER symptoms. And, as you also said, your labs are within normal range. Just as an additional comment, all labs differ with their range, and they not listed in your post. But as you also stated, the endo has told you, and you know they are in a normal range. In your situation, it would be really hard for an endo to resume thyroid supplement, given your labs.
But the person and your symptoms count, too. And unfortunately, many of them, without changing thyroid labs, can represent many things. So this IS a big deal for you, for you don’t feel well. **I think it super good that you have the baseline labs.
I suggest that you ask your primary care doc,t he one who referred you, to repeat the labs in one month to see if there is a trend. If all your symptoms get worse, try to differentiate them in hyper and hypo. Take your pulse and record it.
I guess, in your situation, I’d make a plan for further action, and think about everything listed below. You sound very well informed about “our” disease called Graves’.
1. Begin to consider that all of this may not be thyroid related, so if you have not had a good physical, that is probably a good idea. I say this, for I would not want some other diagnosis to be missed, simply in your best interest in wanting to feel well again, get back to being you again.
2. Think about other stuff going on in your life.
3. You may know this, but an elevated cholesterol can be associated with being hyPO. Having said that, so does diet, exercise and weight.
4. I suggest you make an appointment with another end. Will your GP be willing to make the referral, if you need to have one. If you can do this, I would make it AFTER you have your second set of labs. It usually takes that long to get an appointment with an endo,anyway.
5. Although the endo did a good job with tests and labs, it seems he falls down in the area of looking at you as a person who has distressing symptoms, many of which do represent hypo/hyper Graves’. If you feel he has been dismissive, and it does seem that you are not interested in going back to him, I really encourage you to find another endo or have your GP work along with you to gather information.
As Bobbi said, many symptoms on your list sound hyPO, and you do know from your own experience with hypo, that you felt bette when you began your Synthroid. But it could be something else, as Bobbi suggested. So you are in the position of seeing a good doc who will evaluate you, do a differential diagnosis of what to rule in, to rule out, and to consider, the reason you feel so crappy all of a sudden.
It is my impression, as a layperson and a Graves’ patient, that you do sound hypo. If your heart rate is normal, rather than rapid, your BP is fine, that speaks for hypo also. But my whole message is that you need a compassionate doctor
who will work with you to get you healthy again.
Shirley
Turns out I do have hyperthyroidism (based on bloodwork)- now we’re trying to figure out between Graves & post partum thyroiditis (I am fortunate to have a great endo)… my labs show antibodies, but I’m awaiting a scan referral… anyway… it is a long process, and I hear you on the distressing symptoms- it IS scary, and no it’s not in our heads!!! Stay strong and positive and maybe start from square 1 with a complete physical and labs. Keep us posted.
