[Anonymous]

#1031085

I have been off the ptu for 2 months, and many of my symptoms have returned…plus a new one. I have a loud CLICKING noise when I swallow. Has anyone else experienced this? I am scared…worried that maybe I have a growth or something – or that something has changed for the worse.

Teresa Murphy
tmurphy10@houston.rr.com

[Anonymous]

#1107572

Twice I have had strange sounds during swallowing (some time after RAI). I have occasionally had feelings of a lump when I swallow. Even had a barium swallow test once. Both times it didn’t last. I have had several bouts with hyper symptoms returning and having my thyroid replacement meds lowered.

You could have your endo check out your neck. Sometimes, my doctor has me drink water while she checks mine.

[Anonymous]

#1107573

I called my doc on Friday after my really bad episode Thursday night. He told me to up my PTU to 2 tablets 3x a day. I felt good Friday. In fact I slept without using Ativan. I had no nervousness..etc. Woke up today and was wonderful up until 5:30. I had just taken my 3rd dose of the upped medication 2 hours ago. Well…I began to storm. I had the adrenaline rushes, nausea, muscle twitching, diarrhea, rapid heart beat,tremors, flushing, extreme anxiety and panic. My husband said my whole body felt like I was burning up. Then about 1/2 hour later, it went away and I was feeling some relief. Then 1/2 hr later, I was the recipient of another storm. Same symptoms only this time, I felt like I was zoning out and felt faint. My pulse rate was 104. I am really scared. I’ve never had anything like this happen before. Has anyone felt the “zoning out/seizure like/fainting” feeling? Are adrenaline rushes part of this disease? Is it normal to be up and down like this? Is it part of this disease to have storms – even while on the medication? I’m not sure where to turn. I’m really scared. How can one go from feeling so terrific for a day and a half to crumbling the next? Am I experiencing thyroid storms? I don’t know if this medicine is even helping. Sorry for all this rambling..I’m just scared to death.

[Anonymous]

#1107574

Ann Marie,
Sorry to hear you are feeling badly. Don’t know if I can answer all of your questions, but can certainly offer empathy and understanding. My symptoms tend more on the emotional (anxiety, panic, mood shifts) side than on the physiological, but they certainly resemble yours in the way that they swing — from day to day, from hour to hour, sometimes from minute to minute. “Scared”, in fact, is the word that I have found myself using most often to describe what I’m going through to my family and friends. My doctor reassured me that, since I am sick, I am going to see things through this lens of fear. That took a bit of the sting away. Anyway, hope that you feel better.
Lara

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