[barbra]

#1060127

I am now 4 weeks post RAI, have reasonably good days and then some crappy, tired days. No labs yet. So far so good.

It seems, though, that food doesn’t have the same great taste it had before. My favorites have lost their “glow”. Is that at all possible or is that just in my mind?
After RAI, during the dieting before and the day after, I had been looking forward to some yummy food and was sorely disappointed. And even after these 4 weeks none of it tastes the way I remember, or it should.

Has anyone else noticed something like that, is it just me or is this a transient phase?

Hugs.
Barbra.

[SueAndHerZoo]

#1180613

Hi Barbra.
I didn’t have RAI so maybe I’m not the most qualified to answer, but I did notice and have commented to my husband several times that I think my taste buds have changed since my TT. Everything I eat tastes so much better! I don’t know if there is any medical or scientific reason for it but since our thyroids affect SO many systems in our bodies, it wouldn’t surprise me if there is some connection.

Interesting question – thanks for asking it. I hope you get more responses.
Sue

[Krayon]

#1180614

I have been experiencing something similar, but I wonder if mine is medication related? My mouth tastes like metal for lack of a better way to describe it. It makes all food taste disgusting. This is kind of a come and go thing, especially strong when my mouth is drier, like in the mornings. I am taking methimazole (Graves Disease) and atenelol (hypertension).

[Kimberly]

#1180615

@barbra – Hopefully, you will get some additional responses here from others who have been treated with RAI. I have heard of some stories regarding taste issues in patients who have received RAI for thyroid cancer, but this is usually temporary. Hopefully, you will see things go back to normal soon.

[barbra]

#1180616

Thank you Sue, Krayon & Kimberly for your input. It may well be the meds since I am still on Methimazole, Propranolol and Nortriptyline at least until I get labs done next Monday. I didn’t notice the change in taste, though, until after the RAI. It’s not really metallic as much as somewhat bland. My husband complained of metallic taste when he was on some meds and his doctor said that’s what quite a few medications cause. I guess I’ll see if it’s my imagination when I go on Synthroid.

And, Sue, please send me your taste buds and I’ll happily send you mine.

Hey, Boomer, you’re a week ahead of me. How are you doing? Have you done your labs? Your my compass and you disappeared. Hope you’re doing fine.

Hugs to all.
Barbra.

[SueAndHerZoo]

#1180617

Hi Barbra.

Let me keep my taste buds for another week or so — I’m really enjoying them — but when I notice that I’m putting on a pound or two I’ll make a swap with you.

Boomer? Calling Boomer…. come out, come out, wherever you are!
Sue

[Stymie]

#1180618

Hi!

I had RAI mid sept 2012 and somewhere around January I noticed my food tasted blah. Especially my favorites like green beans just didn’t do anything for me. That’s when I started noticing the dry mouth. Especially in the morning.

Do you have dry mouth?

Someone on here mentioned Sjögren’s syndrome so I had It checked with my primary. All negative. So I asked my endo if RAI can damage your salivary glands and she responded yes that she had another patient that it happened to.

All she told me to do was eat sour lemon candies and drink lots of water.

My dentist also told me to be diligent in your oral hygiene and use biotene products with xylitol.

Hope this helps you.

Diane

[barbra]

#1180619

Hi Sue,
I have actually put on 3 pounds so if you don’t want the extra weight I guess I have to keep my taste buds.

Hi Diane,
I do have some dry mouth and I am going to start using Biotene. Thank you for the suggestion.
I have some hard candy but not really the lemon kind.

Aside from the weight gain I get hot and sweaty very easily even on cool days like today, have muscle aches, feel very tired, can’t sleep through the night and my throat feels dry and raw sometimes.
Could it be I arrived at Hypo?

I think I’ll go in tomorrow for the labs instead of Monday.

Thanks for the help.

Hugs.
Barbra.

[Kimberly]

#1180620

Hi Barbra – The heat intolerance and insomnia are more common with hypER, but weight gain, fatigue and joint pain are more common with hypO. Every patient experiences symptoms a little differently so smart to get labs done to see where you are now!

[Author]

Posts