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  • sparerib
    Participant
    February 25, 2012 at 2:03 pm
    Post count: 15
    #1058872

    My ophthalmologist is now recommending a single botox injection in lieu of the surgery for my strabismus. My incidents of double vision are sporadic and my eye moves pretty well i every direction except all the way up. It is only the right eye that is affected. I wear glases with prisms in them and the RX for the glasses has not changed in almost two years since TED was first diagnosed. In actual fact, the muscle damage is pretty minimal. I might skip the whole thing, he says and proceed to eyelid surgery.

    Please share any experiences or advice. I got great advice before the orbital decompression last May and that has been very successful. Most people can barely see the difference between my two eyes.

    Bobbi
    Participant
    February 26, 2012 at 1:22 pm
    Post count: 1324
    #1170548

    I would recommend that you ask the opthamologist WHY botox instead of strabismus surgery. From what I understand, botox is temporary and needs to be repeated. Strabismus surgery tends to fix things, if they are reasonably stable.

    Bobbi
    Participant
    February 26, 2012 at 1:22 pm
    Post count: 1324
    #1170549

    I would recommend that you ask the opthamologist WHY botox instead of strabismus surgery. From what I understand, botox is temporary and needs to be repeated. Strabismus surgery tends to fix things, if they are reasonably stable.

    snelsen
    Participant
    February 26, 2012 at 3:27 pm
    Post count: 1909
    #1170550

    I agree with Bobbi. Botox is definitely a temporary, and ongoing fix. Strabismus surgery is a lifesaver for people with double vision (diplopia) because of TED. When affected, the muscles of the eye are fibrosed, meaning they get thicker, and less elastic. The double vision results in the area of the muscles affected. Maybe this is not your situation at all so that it bothers you?
    The doctor who does strabismus surgery is almost always a pediatric opthalmologist, who includes adults with TED in their practice.

    At this point, it sounds like you are consulting with a “regular” opthamologist, not an oculofacial surgeon, and not a pediatric opthalmologic surgeon. Is this correct? Does the person you are seeing now perform surgery, and what kind?
    I look forward to hearing a bit more information about where you are with TED, and which doctors are providing care.
    Shirley

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