[kataso]

#1060318

I was diagnosed with a hyperthyroid in Oct. and started taking 5 mg of tapazole. Then in late Nov. the dosage was increased to 7.5 mg. I also was prescribed propanol but stopped taking it because I could not sleep when I took it. I did not test positive for Graves, just hyperthyroid. I am still having symptoms such as tremors, rapid heartbeat, night sweats, extensive hair loss, nervousness, etc. Prior to August, I had none of these symptoms. This is not me! My Endo says these cant be related to my thyroid since my blood tests are normal. Thank you so much!

[Kimberly]

#1181920

Hello – We are fellow patients here, not docs, but here are a couple of thoughts:

1. Did you stop the beta blocker “cold turkey”, or did you work with your doctor to wean off the meds? Patients who stop beta blockers without weaning off can experience “rebound” symptoms.

2. Are you getting hard copies of your labs, so you can see for yourself where your levels are? The “normal” range is fairly wide, and some patients find that they are symptomatic if T3/T4 are pushing the upper limit of normal or if T3/T4 are increasing – even if still within the “normal” range.

3. If you don’t have Graves’, has your doctor given you another diagnosis (thyroiditis, overactive nodules, etc.)? Getting a specific diagnosis is important in terms of selecting a treatment option.

Take care!

[kataso]

#1181921

Thank you for your response. I only took the beta blocker for a week in early Nov. I am getting hard copies of my labs and will check! The have diagnosed a toxic multinodular goiter that has caused the hyperthyroid. When I had blood tests three weeks in a row in Nov., two weeks were low and one week was normal but now they have said they will only testing once every two months. They explained these results (low and normal so close to each other) could be due to the nodules producing more hormone at certain times. I guess that is why this is frustrating now because my lab could be normal at the time I want but I could be having the symptoms because I could be very low inbetween lab results.

Thank you again for your response. I do appreciate it! .

[Raspberry]

#1181922

I hope your labs reveal useful info Kataso. Early on there was some question about whether I had a toxic/hot nodule which could produce hormone in addition to Graves. My endo said that since the 5mg of methimazole I was on controlled my levels so rapidly that it was unlikely as nodules often require higher dosages and sometimes block and replace strategy which is high methimazole plus levothyroxine to get stability. The normal way to tell if you have a toxic nodule is to have the radioactive uptake test (mine was inconclusive though). If you haven’t had the uptake test yet it’s a good idea and TSI bloodtest too to check for Graves’ antibodies. And did you get a thyroid ultrasound? Anybody with nodules needs to get that done too.

[kataso]

#1181923

Thank you. I did have both the uptake and the ultrasound. Uptake shows “hot” activity in both areas of thyroid. Ultrasound shows nodules in both sides of thyroid as well. I did not test positive for the graves antibody.

[kataso]

#1181924

Thank you. I did have both the uptake and the ultrasound. Uptake shows “hot” activity in both areas of thyroid. Ultrasound shows nodules in both sides of thyroid as well. I did not test positive for the graves antibody.

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