[sarawebberdurnell]

#1060351

So I am all scheduled for my TT on Monday and have finally settled into the thought process that this is really the right choice to make. I am not eligible for RAI according to my drs since my uptake was so low, only 17%. My symptoms are across the board from hypo to hyper and some change every few weeks as new ones pop up. We have had trouble getting the right dose of Methimazole and my labs have been pretty up and down. My Graves is still very active according to my endo when she called tonight, but my numbers (TSH, T3, and T4), look really good. She seems very apprehensive about me having my TT because she is concerned that it may not resolve my symptoms since my labs look so good. Though she hopes it does and that we can move on to the next step.

I have to say…I am starting to feel crazy!! Like, lock me up cause I’m making these things up. Is it possible to have normal lab results and still be very symptomatic? After her call tonight, I am feeling like my balance has just been knocked over.

I just got to feeling that this was the right decision for me and was excited (sort of) for surgery Monday and now I’m a mess again. I just want to have one day that I feel good…actually good and like myself again. Is that so wrong?

Thanks for listening…well reading…this.

Sara

[snelsen]

#1182116

I’m your cheerleader! Go for it! It is a definitive solution. Easier to manage, you will know “where you are.” Plans are made, you made your decision, sounds like you own it and it is a good one. When the darn thing is out, it is easier to manage and regulate…though not without a bit of trial and error till you get to that”sweet spot” for you.
Much love and caring,
Shirley

[sarawebberdurnell]

#1182117

Thank you so much Shirley That really makes me feel better!! I need a cheerleader. For the first time in 8 months, I forgot to take my meds last night because I was so rattled. One day may not really make a difference, I don’t know, but I feel like massive doo-doo today. Monday isn’t going to come soon enough and my endo (though she means well), just has to deal with my decision. I want my life back.

Thanks again Shirley, your encouragement is exactly what I needed today!! It means so much to have the support of others who know exactly what you are going through.

Sara

[Raspberry]

#1182118

Good luck to you Sara, I’ll be rooting for you please update us as you feel up to it!

[AzGravesGuy]

#1182119

Hi Sara!

Your symptoms sound pretty on the money with Graves’. Most endo’s don’t realize that with bloodwork in normal range, symptoms can still persist.

Don’t let it get the best of you. My endo was not exactly full of encouragement when I told her I was going for a TT, but once I made it clear it was going to happen with or without her input, she changed her tune.

My psychiatric symptoms have all disappeared since my TT. No anxiety, Graves’ rage, insomnia, or indescribable strange feelings.

Monday is fast approaching and I am sure your mind is racing with presurgical jitters. That is normal for anyone. Let them flow through you. The more you try to stop them the worse they become. In the days leading up to my procedure I was giddy and couldn’t wait. This was in hindsight a displacement of anxiety. However, now that it is done, I feel foolish for having any anxiety at all.

Life is so much better, so remarkably different!

I know you will find tremendous relief after your “big blink”. The change is instant and uncanny.

If you get nervous in the hospital before surgery, just remember we are all waiting at the finish line, clapping and cheering for you every step of the way. You can do this.

[LaurelM]

#1182120

Exactly what AzGravesGuy just said. There is still some journey after the TT for recovery and finding the right replacement dose but I no longer feel unwell and not totally myself. I am still needing an occasional nap but that is lessening too as I approach normal but I am also walking 4 hilly miles a couple times a week and I feel good doing it.

Best wishes for a boring and uneventful proceedure and a speedy recovery.

Laurel.

[SueAndHerZoo]

#1182122

Getting out my pom poms to cheer you on with the rest of the gang!

My endo was not a supporter of a TT, either, but a few months afterwards during a check up he shook my hand and said “You made the right decision – good for you.”

No, surgery may not clear up all your symptoms and you won’t feel consistently and instantly wonderful, but as I tell everyone, “A bad day after surgery is still so much better than a good day was before surgery.” The challenges are different and much smaller.

The endo’s just don’t seem to be able to relate to what we go through with Graves. Mine has told me often that my symptoms can not be due to Graves because the numbers didn’t support it. He also tells me that I shouldn’t feel the difference when I make minor tweaks to my Levothyroxine, but I KNOW I do.

If your gut is strongly telling you to postpone the surgery then listen to your gut, but if it’s just the surgeon that is causing you to doubt your decision, then cast that aside and move forward. I’m betting you won’t regret it.
Sue

[sarawebberdurnell]

#1182123

Wow everyone!! Thanks so much Your words of encouragement mean so much. Sue, I only started doubting my decision when my endo brought up her doubts. I’m glad that my dr isn’t the only dr who isn’t a full supporter of a TT and that you know what I am talking about. AZGravesGuy…thanks so much for your post. Reading how you are doing post op has been extremely helpful and is setting my mind at ease. Having the support of all you wonderful people has made this a somewhat easier road.

I’m ready for the next step. And yes, as Monday approaches I am getting kinda freaked out, but I know this is intensified by the Graves (plus I’m not super excited to be knocked out for 3 1/2 hours, it’s a control issue I have ). I’m ready for the smaller challenges. I want myself back and I know this is the way to do it…no matter what my endo says.

Thanks for all the support and cheerleading!! I need it Bless you all!!

Sara

[AzGravesGuy]

#1182124

Good luck tomorrow Sara!

[Kimberly]

#1182121

@Sara – Hope all goes well…please keep us posted!

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