[ewmb]

#1065735

It took me several months to really start feeling better. It could be that your dose isn’t high enough yet to make you really start to feel better. I will say for me that I never really felt normal again on ATDs. I wanted RAI from the start but was talked into trying ATDs. Went hypo on them, had to go down on them. Went hyper again after asking to get off so I could have RAI. It took me almost a year to go hyper enough to get RAI. If you think ATDs aren’t for you and don’t want surgery then personally I wouldn’t wait on ATDs to work for you anymore. Others have had a much different experience. Hope that you feel better soon.

ewmb

[Corinne]

#1065736

Thanks for your quick response. I feel like I am going to feel like that as well. I have always thought from the beginning that I wanted RAI, but it took a while to get an endo appt, then I had a lot going on with grad school and stuff so I held off. Now I think it would be best…but I still have some fear you know what I mean. I don’t want worsened eye problems (even though I know its rare….etc), everything still just scares me. Im on a bit of a high today though, because I just finished my last hard core grad school retirement for the year, so now I feel I can focus on my getting better again….or really finally focus on getting better.

Also wanted to note I meant heat SENSITIVITY/intolerance not insensitivity.

[bluewave]

#1065737

I was found to be hyperthyroid and started on ATDs this Jan 29. Subsequent tests showed the cause to be GD.

I’ve been on ATDs 2.5 months. After 7 wks, more tests were done, and my 20mg/day Methimazole was increased to 30mg/day. I also take Atenolol. My TSH dropped down to 0.007 after 7 wks of meds, which was lower than it was just before starting the meds.

Some symptoms, like my heat intolerance and frequent BMs, have improved significantly, but maybe that’s just the Atenolol. I had lots of other symptoms, and they have all improved recently, but I expected much more after 2.5 months. Maybe I should have been on a higher dose earlier. The first Dr did not do FT3, and when I switched endo’s, the new one did that and more, then increased my meds, and I am starting to feel better.

I’ll meet w/ the endo tomorrow and see what’s going on, but my overall response would be that after 2.5 months of meds, I don’t feel anywhere near like I did before I got sick, but I’m a little hopeful now.

Take care

[ewmb]

#1065738

Corinne,
I know the scary feelings but I didn’t want to feel like I was going to feel bad forever. I am middle aged and have teenage kids. I really missed out a lot on their lives in the last three years. I feel now that I won’t be "off’ forever. I think I am close to getting the right dose of replacement hormone after about 8 months of trying. I think we actually overshot a little this last time so we have dialed it back. I am also going through what I think is menopause so I am dealing with more than one thing, oh also have fibromyalgia. Hope that your appointment goes well. Make sure you make a list of all the questions you have about the RAI. I had many……. There are lots of posts here about what it entails and what happens afterward etc. in the archives. Just search RAI.

Congratulations on finishing your semester. That can’t of been easy. I couldn’t even get to work most days when I was really bad ” title=”Very Happy” />

[Corinne]

#1018563

Hi,
I had a question for all of you on ATDs. I am on 15mg methimazole/day, and I was wondering if those of you that were taking them felt better quickly? I have been on them for about 4 months now already (can you believe it!…seems like just yesterday) and if anything I feel my symptoms are worsening, especially my muscle wasting and intense weakness in my legs, my fatigue and dry eyes. The tremors and hot insensitivity are a bit better. But my heart still races and flutters too (I am also on proprananol 80mg). My T4 and T3 were normal last month, even though my TSH was still .07) I have another appointment next week with my endo, where we were planning on deciding on RAI or not. I am not convinced the ATDs will work for me, because they are taking a long time for me to feel any better, so I was just wondering how it felt after 4 months of ATDs for you guys!? Did anyone feel a difference quickly? I am now leaning towards the RAI, but just wondering what you felt like.
thanks
-Corinne

[Kimberly]

#1065739

Hi Corinne – Everyone’s experience is a little different. I actually felt the worst during my first 10 weeks on Methimazole, as my levels fell from hypER to the bottom of the "normal" range during that fairly short period. I felt very fatigued and could barely make it through the workday. I finally started feeling better when my doctor reduced my dose and my levels moved closer to the middle of the "normal" range.

Are you receiving copies of your lab reports? It’s possible that you are in the "normal" range, but your current level is not OPTIMAL for YOU. The "normal" range is pretty wide, and different people might feel better on the low end, mid-range, or high end.

Best of luck!

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