[caitlin]

#1058780

Basically I just want to know if there is anyone suffering from GD thats close by, so far I don’t even know anyone with it who is even in the same country as me!

It would just be nice to know someone close by who I can get in touch with easier when I’m having problems and generally just have to relate to. Its getting a bit frustrating whenever I try to talk to my friends about it and I just get bombarded with questions because they don’t understand.

[RebeccaJT]

#1169919

Hi Caitlin

I’m orginally from Shropshire, now living in W Sussex, being treated in London. But I’m in ENGLAND!!! There are a few of us on here, I’m sure the others will check in as well.

If you’d like to get in touch, send me a private message – should be a little PM on the right hand side of my post. This will send me a email to my inbox here on the forum.

You are absolutely not alone but I really do understand where you are coming from. Our American cousins are generally more fortunate that us here with the NHS (God bless it!!) but there are good doctors and good treatment to be had, but as you are probably realising, you need to educate yourself about your illness – I think the British system encourages too much passivity. I am most definitely the captain of my GD ship these days, however hard I find that!!

But I would be lost without a personal contact I made on a forum here, and we now speak on the phone and email, having attended (a rather dodgy) thyroid patient support day in London together (it was like internet dating!!). The British Thyroid Foundation do have a helpline of trained volunteers as well, I spoke to a lady through them a couple of times and she was lovely. They definitely had contacts in the North and there are some support groups. Obviously use your good judgement about what’s helpful.

Anyway, only contact me if that sounds helpful. You’d be forgiven for thinking, after reading back through my posts, that I’m completely deranged ” title=”Very Happy” /> . I promise you I’m not, this is just a good place to vent frustration (if you want to start cultivating a virtue to help with your GD journey, I’d suggest patience, not my strong suit!!!).

Anyway, glad you found us here. Good luck with everything.

Best wishes

Rebecca
x

[catherine]

#1169920

Hellooo

Joined the forum this week. Have you had any luck finding support locally? I’m in the South-East of England, recently diagnosed and also looking for support. Nobody I know had heard of Graves Disease…well, nor had I until my diagnosis! There are some great informative and hopeful posts and articles on this site, glad I’ve found it.

Hope you’re ok.

Catherine
x

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