[ely2009]

#1071995

Sounds like you’ve had a rough year. I am also on Methimazole (2.5 mg/day), but I’ve not had any reaction to it – at least that I can separate from regular Graves symptoms. I’ve not had any nausea. Sorry I’m not much help. Take care.

Emily

[Ski]

#1071996

One of our more recent members, Amy, has a teenage son who’s been dealing with nausea since his initial diagnosis. He’s been examined by all the professionals, considering every possibility, and none of them could find the cause. It didn’t seem to be connected to his ATD, but he did remain hyperthyroid, so we all suppose that somehow, the hyperthyroidism was causing the nausea. As Amy posted in the past couple of days, he has FINALLY gone hypo, and we’re all hoping his nausea subsides. We’ll see how that turns out (hoping for the best for him!).

PERHAPS you’ll start feeling better as your levels drop? It’s kind of odd to hear about nausea with methimazole, I’ve heard of it a few times for people who take PTU, because of the foul taste, but not so much with methimazole.

Let us know how it works out, okay?

[lindkanne]

#1071997

Thank you for your response. Yeah, it’s been a miserable year. I’m taking five 2.5mg Methmizole a day. I’m praying my levels start to go down after my second iodine treatment. I wonder what that will feel like. I can’t wait. I will keep you posted.

[lindkanne]

#1019494

Hi. I was diagnosed with Graves a year ago March. I’ve been taking Methimazole since then. I had the radioactive iodine last September 2008, and my thyroid is as strong as ever. I’m taking the same dose of Methimazole that I took a year ago. We’re scheduling another dose of the iodine next month, May 2009. I have been nauseous since September. Here I am 7 months later, and the first thing I did this morning as throw up. Ugh. We’re not sure what is causing the nausea. My primary care and endocrinologist seem to think it’s from the Methimazole. Does anyone else suffer from nausea too?

[c14martin]

#1071998

Hi! I was diagnosed with GD in Feb of this year. My symptoms were shaky hands, naseau, dizzyness and just feeling bad. Since I started on the methimazole, my symptoms have subsided along with a decrease in my T4 levels. When I was diagnosed I started ona gluten and dairy free diet. Now I can’t say for sure if it’s the meds or the meds combined with my lifestyle and diet changes but I feel 95% better.

Christy

[lindkanne]

#1071999

That’s awesome Christy. I will look into the dairy-free and gluten-free diet. At this point, I’ll do anything. My problem is that the Methemazole can’t seem to lower my T3 levels. I’ve had one dose of iodine and now we’re scheduling a second one. My doctor is going to double the dose from 15 to 30. Hopefully, that will do the trick. Cross your fingers for me. Thanks for your help!

[catsmum]

#1072000

Hi Lindkanne,

My daughter has Garves an actully presented with nausea. Initially the GP diagnosed hiatus hernia but blood tests showed she was dangerously hyper. She is on carbimazole & thyroxine, and is now hypo but still gets nausea. She has been prescribed cyclizine to take as needed & finds this helps.
Take care,
W x

[lindkanne]

#1072001

Thank you WX. This forum is awesome! I’m sorry others are experiencing the nausea, but somehow it helps to know others are experiencing it as well. It is extremely helpful hearing what others are doing to help them. I have found Zofran helps with my nausea… much to my insurance company’s frustration. For some reason, my insurance doesn’t like covering the Zofran. I had to pick up a prescription, yesterday, and they refused to cover it. Now, $48 later, I’m feeling relief. Thank you everyone!

[amyl]

#1072002

Hi,
As Ski told you, my son has been dealing with nausea for 3 years. The first 2 years, his doctor thought he had Crohn’s disease. A year ago, we found out it wasn’t Crohn’s but Graves. He took methimazole for 8 months and went hypo for a very short time. During that short period of time, his nausea disappeared. As soon as he went back to hyper, the nausea returned. In February, he had RAI and is now hypo again. His doctor started him on Synthroid about 10 days ago but he’s still exhausted and he’s still nauseous. It’s very frustrating! We thought doing the RAI and becoming hypo would resolve the nausea but it hasn’t. His doctor said they can’t find a reason for the nausea….more frustration. Now, my son has become VERY depressed so his doctor started him on Wellbutrin. He took his first pill this morning and then called me from school to say his nausea was worse than ever. I really don’t know where to go from here.
My son also takes Zofran twice a day for the nausea but now our insurance company is saying they will only allow him 12 pills a month. He needs at least 60 pills month so we’re fighting the insurance company. Zofran is the only medicine that actually stops him from vomitting…it doesn’t eliminate the feeling of nausea though. He’s also tried phenergan, compazine and tigan but they don’t help.
I really hope that your nausea resolves once you become hypo.
Good luck!
Amy

[lindkanne]

#1072003

Oh Amy, I pray for your son. His experience seems to parallel mine. Including the insurance company denying the Zofran, they will only allow me 15 and I too need 60. I don’t understand why they have such an issue with Zofran. I asked the pharmacist if there was something in Zofran that is narcotic or would cause anyone to want to use it recreationally. She said no, and that they have another customer who uses it and he faces the same problem. I don’t get it. I am scheduling my second RAI in May. The first RAI didn’t work. I’m still taking the same amount of Mathemazole I was taking a year ago. Please tell your son I’m sorry he’s going through the nausea. I pray him strength to continue his battle. lindkanne

[askillma]

#1072004

Hello, I know I’m late to this, but I just wanted to comment that I too experienced nausea, I don’t know if it was from being hyperthyroid OR from methamizole, but I tried to eliminate ALL gluten and almost all dairy, and I took the pills at night, and that really helped. (I had been taking them morning and night. ) Best of luck to you guys, sounds like it continues to be a big problem and insurance companies don’t help!

[berniece6537]

#1072005

Hi There
I actually dealt with alot of Nausea after my RAI treatment. It lasted nearly a year, I had my RAI done in Feb 2008,
and I remember telling my friends that I was still on my boat ride when they would ask me how things were going with my treatment. Honestly it’s really hard to tell what is causing the Nausea because everyone is different and Graves has many different stages. I felt every one of them. My Nausea eventually stopped and my thyroid levels are now normal but as I recall when I became hypo the Nausea still remained…..so what am I saying here….well…It WILL GET BETTER!!!!
Hard to read I know but it is truth. I still need 10 hours of sleep and I can’t run like I used to but I look back on all those mornings and nights vomiting and being in so much pain that I had to stay in bed and I can say that mentally I’m stronger because of having to ahve perservered through graves and all it’s up’s and downs.
I now have a whole new problem on my hands that begun as soon as I got the news that my thyroid levels were within a normal range. I may have a tumor in my pancreus and am scheduled for tests and scans next week. Part of me is stronger and prepared for whatever they may find or not find because as I said to my doctor "If I can get through Thyroid disease then I am gonna fight to get through any thing else life throws at me"…I want to encourage you all to do the same. Stay positive and on those days when you spend most of your time sick find something to laugh about to keep your mind encouraged.

I pray that this helps
Your not alone

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