[dakotamidnight]

#1064050

Buttamama28 wrote:Hi Kimberly,

As of right now I am at a free clinic, and I only have one physician. She is waiting to do blood work at the end of October to figure out if I am going to stay hypo or not. The only thing about that; I am so intuned and sensitive to my body now, that as my TSH rises- so does my pain. But she is only an Internal Med doctor; most of the doctors at the clinic volunteer. Basically, meaning the majority are like 90 yrs. old, and have retired from mainstream. She wants to schedule another Uptake Scan, which I haven’t heard in years. I got so excited that someone want to do an actual thyroid based test, that I completely forgot about my own issues….I have a severe allergy to iodine! YIKES! So I am in the process of getting the message to her, before the county approves a test that I can’t have- and before she puts all her eggs in that basket.

Some of my pains are residuals. I have neuropathy in my feet, pretibial myxedema in my legs, reoccuring sciatica, and a bad case of the "slippies" in my hip joints. Some of my issues come from prolonged hyperthyroid that wasn’t treated, but the rest I think comes with weight (which is rising no matter how healthy I try to be). Thank God, I am not diabetic or anything, but it is really a fear of mine. I lost my best friend two years ago to diabetes.

Buttamama28

I could have written this myself – right down to the iodine allergy! They gave me SSKI when I was in thyroid storm and my entire face blistered within 10 minutes.

My endo’s thought is that it’s another auto-immune causing the pain, as it "flares" at times and disappears completely when I’m on higher doses of methimazole. If I go hypo now on my lower dose I get terrible leg pains and my muscles have horrible charlie horses that cannot be massaged out. I do better on the high side of normal for labs – it seems to keep the other in check better.

I’ve been trying to find out for 3 years what it is with no luck. Endo’s thought was either fibromyalgia or MS, but I haven’t been able to keep state insurance long enough to ever get it for testing.

Same thing with the weight here too – I can eat all junk or healthy as can be, and I’ll gain the same amount of weight. I was big before being diagnosed, lost 80 lbs while suffering from thyroid storm for months, then as soon as they put me on meds I gained it all back plus another 75 lbs or so. I’ve tried dieting and weight watchers with no success – nothing seems to make this weight budge.

[Author]

Posts