[Ski]

#1067508

Stable really means both T4 and TSH should be in range ~ the fact is that your body doesn’t "recognize" that it’s well until the TSH has caught up with the T4. Try to remember that even if you haven’t been "really healing," you’ve still been in a state of "less harm," if you see what I mean. You’ll definitely feel SOME amount better as you approach your stable levels, but the REAL healing will start in earnest when you have reached stability. Each step closer is worth the effort to get there, believe me, whatever that means you must endure. Changing doses has to be done in small amounts (large shifts trigger "emergency responses" in the body), so it does take time, and each change is a little weird, I’ll grant you that ~ but keep the goal in mind. YOUR normal point. Every minute, of every day. It’s worth it.

[ewmb]

#1067509

Thanks for the reply. What do you mean by emergency responses? I feel like I’m a little hyper feeling when I change doses. My BP goes a little hay wire and I’ve had a few high pulse readings and a night sweat since I started a new dose three days ago. Is this my body thinking that it’s getting too much again even though it’s not?

ewmb

[Ski]

#1067510

Those reactions have more to do with the period of time while your body equilibrates to the new dose ~ for a little while, you tend to feel up & down kind of randomly, until the levels evens out in your bloodstream. That usually takes a week or two.

The "emergency response" I refer to has to do with large changes in thyroid hormone levels (such as when we initially go hyperthyroid, or when our levels drop rapidly after RAI or thyroidectomy), and those symptoms are things like hair falling out and brittle nails. That’s caused by the body’s natural protection, which interprets a rapid change in thyroid hormone as a potentially dangerous anomaly, and therefore restricts resources being used by "non-essential" body functions, like growing hair and nails. As levels stabilize and normalize, the reaction stops, but when you’re just starting to feel well through treatment, it’s no time to trigger another period of these kinds of symptoms in order to increase your thyroid hormone replacement.

I hope that helps!

[ewmb]

#1067511

Yes thank you. I will keep on keeping on as I have no choice but to think that it is all helping as you point out. For those out there who are getting ready to go through RAI or have just done it don’t worry. This really is easier than being hyper it just seems hard in the moment. Life doesn’t stop either when you are getting better so I have to deal with that too…… Thanks for the reply again Ski. Tomorrow is another day to get over the flu and have my levels settle out.

ewmb

[ewmb]

#1018853

I had RAI on May 8, got first hypo numbers end of August- 19TSH Free T$ not normal can’t remember number. Started on 25 mcg of levoxyl. Went to 50 mcg end of September as TSH was 62…… Now just got TSH back again it’s 33 and Free T-4 has just come in range. My endo only raised me to 62.5 mcg this time. Get blood work done again in a month to see if I need to go to 75mcg. Just wondering if someone else has had their dosage raised so slowly. I am hoping that since the Free T4 is now just in the normal range that the TSH is lagging? I just hate changing doses. For about a week I feel really off whenever I change doses now. Doesn’t help that I am at the end of fighting off the flu I guess.

I know that Ski mentioned in a post recently that you can’t really start to heal until you are in normal range. Does that mean both TSH and Free T4?

Know I’ve come a long way but I am still not really able to make it through a day without a rest in the afternoon. Sore muscles etc.. lots of hypo symptoms. I would like those to abate soon but am wondering how long it might really take?

Thanks for any information or personal experience.

ewmb

[ewmb]

#1067512

Anyone else out there ever have an attack of the shakes after RAI? My BP suddenly went up to 131/80 and I was shaking, cold and couldn’t get warm. Ended up eating something, taking a bath and things have settled down. This was all in about an hour and half. Have noticed that my ankles are swollen today too. I thought this was gone. Before I started the replacement hormone I felt like this. Hope this is not a new thing……. Could this really be a part of the adjustment process? FYI- Had RAI May 8th and went Hypo by end of August. Just changed levoxyl dose this week again.

ewmb

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