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My MMI dose has been changed (again) to 5mg alternating with 2.5mg every other day…or I can take it as 3.75mg daily, which involves cutting a half pill in half to get that quarter of a pill. I’ve read on other forums that alternating dosing is bad, and the steady dose is a lot better. I also saw a dissenter state there were studies showing it didn’t matter. I must be a lousy researcher, because I couldn’t find anything supporting either way. But, I have been so up and down, (down at the moment) that if there is any thing I can do to become more stable, I’ll try. So does it matter? I’ll admit that getting that quarter of a pill at the moment could be tricky because of my vision, but I’ll enlist some help if it really could make a difference. But if it really made a difference, why would the endo order it that way in the first place?
I’m a smidge nervous as it is about this dosing. I was on it from Jan to late March, and ended up becoming hyper again, and I’m not really sure why I won’t have the same result now, although I’ve decided for me hypo is worse from a functional standpoint. The endo said she feels the antibodies should be settled down now, although I’m not sure why she thinks that. No further antibody testing has been done. The more I learn about Graves, the more I learn what I don’t understand… (Doesn’t help that I have brain fog at the moment, either.
)Thanks Kimberly! Now why didn’t I think it through like that? This is where the brain fog comes in, I suppose. I sort of didn’t connect that my last dose was a different alternating dose of 5/7.5mg, and it was my assistant who told me I seemed ditzier on certain days. I noticed a pattern that it was the higher dosed days, but didn’t connect the dots to even out the dose at the time. It just never occurred to me. If I start to notice a pattern this time, I will make the effort, or get someone to help me, to cut the pills to even out the dose. I am so hopeful that this dose reduction will allow me to start tracking better…without going hyper.
When I was on this dose before, I was doing some cutting and splitting doses, and I got really hyper again, anyway. Then I went to some straight doses, but when the alternating dose was ordered again, I think I figured “why bother?”, since I couldn’t stay stable anyway, and it was harder to see to do it. But also by that time, I was already heading waay back down and had developed the brain fog. But yes, on that last, higher alternating dose, there was a day to day difference, at least to those around me. I’ll keep an eye out, and pay attention to observations of those close to me, and even it out if necessary. I needed a new pill cutter, anyway, so I got one with a magnifier, just in case.
I am on an alternating dosage, as 2.5 mg per day is not enough and at 5 mg per day I went completely hypo (TSH=54.
, so now I take 2.5 mg mondays, tuesdays, thursdays and fridays and 5mg wednesdays, saturdays and sundays.
I think I feel slightly better on the days I take the 5 mg, but in general I don’t feel much diference.
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