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  • RhondaG4
    Participant
    Post count: 127

    Hey guys,
    Saw Endo today. Normal T4 after 6 weeks post RAI. Bad News….Endo is leaving town next month. I found out there were only 3 in Wyoming…not 7 like I thought. And now we are down to 2. Went out to the Oncology center and they took 11 tubes of blood…checking for other auto immune disorders and checking on my red cells. Just thought I’d give everyone an update. Hope all is well. Still recovering from the Double Pnemonia and the trip to California to watch my son graduate from USMC boot camp. Take Care Rhonda

    Ski
    Participant
    Post count: 1569

    Oh my, Rhonda! Thanks for the update! I’m glad you’ve got normal levels now, that’s a milestone! You may still have some fluctuation ahead though, so brace yourself. The RAI can continue to work for up to six months, though definitely at a lesser level than the first six weeks. Keep an eye on your symptoms so you can get tested as soon as you suspect you may have gone hypo. The fact that your endo is leaving town is not great, but if you have a relationship with either (or both) of the other too, you should be able to get them to respond to your blood test results without having appointments. Have your doctor leave a standing order for blood tests in place, and ask for either (or both) of the other doctors to receive copies of your results. Also ask for a copy to be mailed to your house. It’s your body, your results, and they have to send them to you if you ask. That way you are all informed ASAP, and prescriptions can be called in for you. At first, it’s probably a good idea to get your thyroid hormone replacement in 30 or 60-day supplies, because you may find that you’re changing doses pretty quickly. After you’ve hit some stable dose, one that keeps you normal for at least 4-6 weeks, then you’ll have to start waiting for about 6 weeks after each time you change a dose, because your body will need that long to metabolize it properly and for the TSH to test accurately. So, depending on how long your doctor is away, it may not make a really big difference. Still ~ just make sure the information is easy to get for everyone, and you’ll be well taken care of.

    crazyhickchic
    Participant
    Post count: 5

    Hey Rhonda, I live in Rawlins Wyoming, and my Endocrinologist is in FT Collins Colorado, and I am very happy with her right now, if you are up to the drive, I highly recommend her.

    RhondaG4
    Participant
    Post count: 127

    Thanks Ski…that is handy info to have. I still have one last appt with him before he moves, so I may ask him to leave a standing order at the lab. I’m kinda getting excited hoping that some of this mess is behind me, but also have come to the conclusion that this isen’t strep throat, and one course of medication and two weeks aren’t gonna "cure" the problem.

    Thanks Crazy,
    I will keep that in mind. I was thinking of going to Denver…so Ft Collins is a little closer. I’ll check with my insurance and see if they will go for it. Maybe your doc may consider getting a Wyoming license and starting an outreach clinic here. I know the hospital here is searching for someone.

    Hugs to both of you, Rhonda

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