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  • elf
    Participant
    August 20, 2009 at 9:50 am
    Post count: 181
    #1068665

    I had 10 mci, 4 years ago, and thought that was the smallest dose… Apparently they keep fine-tuning the dosage. With my dose, it took 5 months for me to go hypo. Theoretically, it could take a bit longer for you… Could be too early to be thinking about a second RAI.

    runlacie
    Participant
    August 20, 2009 at 1:52 pm
    Post count: 222
    #1068666

    I did some searching on the rai dosages and found a bunch of different studies on pubmed. Some used doses as low as 5 mci, and those had the most failure rates. But they also show that gland size prior to treatment also plays a part. I guess what I wonder is- if mine fails and next time I have to have a larger dosage, that just makes my radiation exposure that much higher. Wouldn’t just giving me 10mci in the first place make more sense? lol, not to mention the cost of that little pill was about $1700- not including the radiologist or doctor costs. Oh well, I guess I’ll just keep hoping they got this right the first time!

    I went to the lab and they said results back tomorrow. But my endo is closed on Friday, so I guess I’ll have to be waiting ’til Monday to find out.

    Andros
    Participant
    August 20, 2009 at 2:47 pm
    Post count: 29
    #1068667
    runlacie wrote:Lu Anne, thanks for that quick response! Did you have to wait 6 months each time you had another RAI? That’s what I don’t want to do- wait anymore. I’m hopeful that this is just another die off, since I did feel like this once before and then it went away. Kind of like 2 steps forward, one step back? I wasn’t expecting all the ups and downs, or maybe I am just more aware than some people (since I’m kind of obsessive and wear a heart rate monitor and keep track of my pulse). I’m sure I’ll still show as hyper on tomorrow’s blood work, but I did think I was heading in the right direction- now I’m not so sure.

    Yes; it was 5 to 6 months between each. Not the best time of my life! <img decoding=” title=”Confused” /> But I made it and you will also. Lu Anne

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