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  • Talley
    Participant
    Post count: 62

    Hi there;

    Today is three weeks since my TT. I feel pretty good – tightness in my throat when I swallow, but otherwise OK.

    I weighed myself today and I am up 4 lb since surgery! I am extremely worried about this…especially since I feel OK – don’t feel hypo and I probably won’t have labs drawn until the end of the month at 6 weeks…

    I’m going to start on MyFitnessPal today to log all my food and keep track of my calories…

    Any other suggestions? When I saw my endo prior to surgery he said he would start me higher on Synthroid since I was used to being hyper and he didn’t want me to go hypo…when I contacted him post-TT, and told him the ENT started me on 100mcg he said he wanted me on 80mcg only! Well, I didn’t listen and have stayed on 100mcg…

    Can the weight gain be the only symptom of hypo? I do have headaches – which is new for me…I could have gained weight due to not working out for two weeks – but I have been back at it for the past week…I work out every day, always have…I’m not going to be happy if this is the “new” me:(

    Talley

    SueAndHerZoo
    Participant
    Post count: 439

    Similar situation – same problem and same concern. I am scheduled for TT one week from today and the blood work drawn 10 days ago shows that I am finally in the low end of normal. It FEELS so much better than being hyper, but I got on the scale today and saw that I put on 1.5 pounds. I immediately thought… “Uh oh, if that’s the result of not being hyper, what the heck is going to happen when I have no thyroid?!?!” I decided that I would immediately start a diet right after surgery but had previously thought that for that week or two I would probably be lying around not moving much and was HOPING to pamper myself a little, not munch on carrot sticks and celery!

    I pretty much decided that the two weeks post-op will be for recovery and healing, and THEN I will decide how serious of a regimen I have to develop to get to and maintain my ideal weight. Will be curious to read other comments.
    Sue

    Kimberly
    Keymaster
    Post count: 4294

    Hopefully, others will chime in here with their experiences, but I think Sue is on the right track in placing a priority on healing post-surgery.

    Because T4 has a fairly long half-life, it takes several weeks to know if your initial dose is right for you. However, if you start experiencing other symptoms of hypo before your next appointment (fatigue, constipation, slow pulse, joint pain, etc.), it’s worth calling the doc’s office for further direction.

    I’ve battled constant weight issues since my diagnosis (close to 6 years on methimazole), and I know from personal experience that it’s very distressing. But now I’m trying to focus less on the scale and more on making overall good food and activity choices. Easier said than done, I know!

    ChristinaDe
    Participant
    Post count: 115

    Hi Talley!

    I really don’t think that this is going to be the “new” you!!!

    I had my TT 5 months ago, so thought I’d chime in here. The day after surgery I was started on 100 mcg of Synthroid (weighed 128 pre-op). Felt great (other than normal post-op fatigue & stuff)…but I did gain about 5 lbs during those first few weeks. I think part of it must have been water retention as I was unknowingly heading toward becoming hypo (which didn’t show up on labs until about a month out). When I became symptomatically hypo, I called my doc even tho I wasn’t due for new labs yet, he ordered them & then increased my dose to 112 mcg. At that point, the weight gain stayed level at that 5 lb weight gain for the next month or so despite getting back into Pilates & watching my diet (didn’t gain anymore, didn’t lose anymore), but I also began to feel the other symptoms of being mildly hypo for the 1st time despite the dose increase. I called again, only about 3 1/2 weeks after the dose increase since they were quickly getting worse, and my doc increased my dose to 125 mcg (which is where I’ve been ever since). The hypo symptoms completely disappeared after about 6 weeks on that dose & I’ve lost the 5 lbs that I gained post-op. Since I’d like to lose another 5 to get to what I believe is my “perfect” weight, I’m continuing w/ exercise and a healthy diet (but not a weight loss diet, since I truly believe that good nutrition is critical right now). I wouldn’t worry too much about 5 lbs, but do stay on to top of it. Easier to prevent, than to lose – in my opinion!

    I totally agree w/ Sue. The 1st few weeks after surgery are about recovering & stabilizing, adjusting to coming off all the various meds that we needed pre-op. Right now, you’re in the place where you still want to baby yourself. You deserve it! And you have plenty of time to fine-tune everything later when you’re stronger and your levels are normal AND stable!! (Honestly, the swings in levels – even swings toward normal – did more to make me feel bad than being either hyper or hypo did.) Once that’s accomplished, a healthy diet & exercise will go a long way as you tweak your replacement hormone to its optimal level & your body begins to relax from the war it just waged. At least that was true in my case. I felt better each month, pretty good at month 3 and by the 4th month I felt great. Now at month 5 – I feel NO effects of thyroid disease or Graves’ other than some remaining eye swelling that is improving VERY slowly (but improving, so I’ll take it!) & the thin hair from all the meds, hormone swings, & trauma. My endo says that this will be the last thing to get better – and will begin to reverse itself after I’ve been off the pre-op meds, recovered, and with stable/optimal levels for several months.

    So try not to worry too much just yet – hard to do – but DO keep an eye on how you feel & DO call in between appointments if you feel yourself moving hyper or hypo. It’s easier to be proactive, then to come from behind.

    Good that you’re exercising already…just give yourself a chance to get at your ideal levels. It usually takes a few months. But once there, in my experience, everything gets pretty “normal”.

    Oh…and Sue…I saw one of your posts hoping for the possibility that your anxiety may be related to your thyroid issues & not a separate issue. My endo and I were just talking about this last week. She deleted a whole host of diagnoses off my medical history since they’ve all resolved since my TT and we can now assume that they were related to my thyroid and not independent diagnoses on their own (anxiety, depression, SVT, chronic fatigue, insomnia, lidocaine reactions, joint pain, etc.)

    Gabe
    Participant
    Post count: 182

    Hi Talley. I’m almost 6 weeks out and I’ve put on about 4 pounds total. However, I have to admit that I haven’t been watching what I’m eating nor exercising. Now that I believe I’m past the post op stuff I’ll start focusing on my eating habits. I had my labs done at 3 weeks and was already hypo so my dose was doubled to 100 mcgs, which is your starting dose (interesting).

    I wouldn’t be overly concerned about your slight gain since it sounds like you are an exerciser and conscious of your weight. You’ll get this under control in no time. Don’t push your body too soon after a major surgery.

    Best wishes,

    Karen

    SueAndHerZoo
    Participant
    Post count: 439

    Thanks for the support, Kimberly and Christina. I am so eager to feel good (finally!) that I almost don’t care if I put on a few pounds, and I (and the people I’ve said that to) can’t believe what they’re hearing. I guess no one realizes how bad it gets living with Graves but for me to want to be “fat and happy” over thin and miserable speaks volumes. Of course I won’t let myself get out of control but I’m certainly not going to worry about it for at least the first 2 or 3 weeks.

    The surgeon’s office called today to go over some stuff, see if I had any questions, etc. and she said that the T4 in my system would still be in there for 4-6 weeks post surgery (much longer than I expected). She said that she’ll start me on Synthroid 5 days after surgery and in most of her patients that allows for a fairly seamless transition between me getting rid of my natural T4 and me taking the artificial one. And she mentioned that we would definitely adjust doses according to how I feel, not just the lab results.

    Hope you’re feeling better about weight gain, Talley…… I think it’s much too soon to be worried about it. Sorry if I hijacked your thread.
    Sue

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