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Hi everyone,
I just wanted to introduce myself since I haven’t seen any other posts from or about the younger people diagnosed. I honestly can’t describe how hard this past year has been. I actually wasn’t diagnosed until this past August, but I have not been feeling myself since the year before.
Many of you who are posting here seem to be in your early 30s to late 40s or 50s. I can tell you that I feel different than you do. I still get the anxiety and the heart problems and the body aches and everything that goes with it. However, I have school added to all this and it is a HUGE factor.
My family has a history with Thyroid disease: both my parents have Hashimoto’s and my aunt has a goiter. I was expecting something, but obviously I didn’t plan well enough in advance, since I figured mine would manifest at about the same time that most people I have seen are getting it.
But I guess it was a relief in a sense to finally have something to name what I thought was “wrong” with me, because now I almost have an excuse for all the things I didn’t do and/or forgot to do.
Okay, so I am a freshman in college at a really good school. I had no problems growing up. Although I am usually modest, I will say that I am smart. I took calculus 1 and 2 in my junior year of high school. My Graves manifested at the beginning of senior year, right when college applications and this thing called my graduation project was going on. Horrible timing. I was taking 3 AP courses that I couldn’t get out of and I felt miserable. My mom kept pushing me to do my applications and my scholarship applications and all this stuff so I can succeed. (rightfully so) But it stressed me to my limit. I would shut down and not be able to do anything. I got my first ever C in a course. I lost my honor roll spot. I was relying on my previous 3 years to help me graduate, because I was convinced I was going to fail.
I didn’t, thank goodness, and I graduated with the rest of my peers in June. I was extremely lucky with my doctor situation, because my mom works for a cardiologist who is good friends with an endocrinologist. I was in and out within a week, and I was diagnosed the day I was moving into my dorm. Again, horrible timing. I needed to go back home the next week to discuss my options. I was skipping classes the first week of college. Great start.
So here I am, about 3 months in and I am still not myself, but better. My heart has gone down to a completely normal pace and I am considering getting RAI over winter break because everything else is going too slowly according to my doctor.
It is the last stretch into the semester and I feel like I am doing the same thing as last year, where I tell myself I have no time and then I go do something for fun and waste the time I truly had. I am frustrated, but I am learning to live with who I am and what I’ve got.
Thank you for listening.
I am praying for you:) and I pray that you dont get TED…
Hello and welcome! It’s true that this board is mostly an older demographic, but we get college students who post from time to time. You can use the “search posts” feature in the top right-hand corner of the screen to look for keywords such as “college”, “student”, etc.. to read older posts. Here is one that also includes a link to an article on students and Graves’:
http://gdatf.org/forum/topic/43028/
You can also send a private message to another poster by viewing one of their posts and clicking on the PM icon that appears a few lines underneath their screen name. The system will “ping” whatever e-mail address the other person used to sign up to let them know that they have a private message waiting. (You have to be logged in to the system in order to view your private messages).
Take care!
Hi, I am an 18 and a freshmen in college too!! I have had Graves’ since I was 14, I went through a lot of the same struggles as you. Feel free to PM me I would love to talk:)
I think you will find sage advice in these forums. As a man, I feel outnumbered but never out of place. I think the challenges we face as individuals (school, parenting, jobs, etc.) unite us.
As a college student, you can usually take a letter from your doctor and give it to the dean of student’s office as documentation whenever something significant occurs. Depending on the dean, you may be able to get a letter addressed to your professors that leaves out the exact medical info, but that asks for accommodations on days you have documented absences that are medically related. Professors may or may not consider undocumented excuses because you’d be surprised at the fake ones. Hopefully, this advice will not be needed.
Yay, Megan and Rebecca! I hope you two connect. Megan, didn’t I meet you in San Diego?
ShirleyHi Shirley,
Unfortunately I didn’t go:( I didn’t even know there was a conference in San Diego, and I don’t live that far from there!!Oh my. Sorry you were not there. THere were two 18 year olds there, girls, and I think one guy. He probably was older.
srebecca0510 wrote:So here I am, about 3 months in and I am still not myself, but better. My heart has gone down to a completely normal pace and I am considering getting RAI over winter break because everything else is going too slowly according to my doctor.Welcome Rebecca! Sorry you have to join our club though. I am older, but at a point in my life where Graves is majorly derailing my future. I have sympathies for where you are at. I would encourage you to educate yourself as much as possible on all the options. I am working toward remission on antithyroid drugs, but if that doesn’t work out am planning on surgery. Based on what I’ve read people seem to get stabilized faster on the replacement hormone after surgery than RAI. But everything has its pros and cons, there is no choice for Graves that has zero significant negatives. It’s a very individual decision which mix of pros and cons works for you.
Rebecca,
I am in the exact same position as you. I too am a freshman in college and was recently diagnosed with graves disease all though its predicted that I have had it for about 1.5 years. I dive on the swim & dive team here and my headcoach actually showed me your post as his wife has Grave’s disease too.
Until reading this post, I think I underestimated what I have gone through and what I am still going through. I always feel overwhelmed and anxious and I know thats not normal, I just don’t feel like myself. So thanks for letting me know that its not my fault
I completely understand what you are going through and it is by no means easy. I’m currently undergoing RAI and infact I have an appointment with my Doctor next week to see where my thyroid is at! RAI actually makes your symptoms worse as it kills your thyroid and therefore all the stored up hormones leave to your body. (I’m sure its way more scientific than that but thats my basic understanding). Thankfully I am surrounded by really supportive people. All though my professors don’t know what I’m dealing with, my coaches and friends do. My dive coach understands I have good days and bad days. Some days I’m my bubbly self but others Im crabby and irritable. My friends understand that too. They understand my weird sleeping patterns and my wacky emotions. Some days I feel like I’m just constantly pmsing. Also it helps when your grandfather was a head honcho endocrinologist at mayo clinic and can help my parents understand what I’m going through too.
Now as far as school goes, I have definitely felt my focus and motivation slip. But I continue to push myself and I know it will get better. I’m actually getting all A’s. So girl you can do it! Good luck with all your end of semester projects and papers and best of luck with finals. As you go through it, so am I! Don’t feel like you are alone.
I’m a sophomore in college, and have been diagnosed with Grave’s since March, though I started getting symptoms when I started my freshman year. It’s been such a crazy experience. I’ve had anxiety for the first time in my life, and when my doctor told me to stop taking my beta blocker I was living with pms on a whole different level. My family thought I was anorexic when I was secretly crying on the phone to my boyfriend at night because I couldn’t eat enough to get full in the school cafeteria. Everyone keeps telling me about the college experience, but this is not what I wanted. It seems unfair that it happened now, but I keep telling myself that there are much worse things out there. My parents tell me that if I have to get one disease in my life, it’s good that this is it… Somehow I’m still miserable at the thought of going to the doctor and getting my blood drawn all throughout college. Should I get my thyroid taken out? How am I supposed to make a decision like this in the midst of finals?
Part of me doesn’t want to tell people about it, because no one can really understand unless they’ve been through it, and I certainly don’t want to play the pity card. Up until now, I haven’t talked to anyone, or seen anything from another Grave’s sufferer, and it’s a huge relief to see that there are people supporting each other. Reading about everyone’s experiences, especially the other college girls, makes me feel like I can do this.
We college girls should stay in touch and share our very out-of-the-ordinary experiences. I’m starting a blog for a class, and would absolutely love any feedback you have… I want to educate people about Grave’s, so no more girls have to go undiagnosed into college… I made a page especially for comments about experience with the disease! Anyone of any age is welcome to post, so we can all support each other.
Hi, Nikabellini, and welcome to our board.
I realize that you are sick right now, and that it’s hard. But we DO get well again. Some folks stay on the antithyroid (ATD) meds, others of us remove our thyroids. We have a disease that can be well-controlled by one means or another. So please try to keep your chin up and expect to feel fine again.I am so glad to find other college students on the forum. My daughter was also diagnosed as an 18 year old in her senior year of HS. She had a TT just 9 days before heading off to college. The surgery went really well and she healed and has almost no scar. She has generally done well, but it is taking some time to get her the proper dose of Synthroid. This process is ongoing. My question for the forum is: Has anyone on the forum gone through the process of obtaining a 504 PLan for a student diagnosed and being treated for Graves Disease? I am looking for help with this process in a college setting to help my daughter as she has experienced some problems with concentration, focus and memory with regards to her learning. She is seeking the accommodation of additional time to complete exams. Any advice would be greatly appreciated!
@sportnut2 – Hopefully, you will get some other responses, but you can also check out the link that I posted on the previous page. It includes an article that discusses some of the options that can be considered under a 504 plan.
Wishing you and your daughter all the best!
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