13 y/o w/Hashimoto’s, but hyper and symptomatic

Yes, we are very, very lucky, although the 5 weeks wait before a diagnosis seemed like years at the time. I think that the fact that her levels were toxic and I was rung up and told to get her to the hospital in the next town asap because the lab staff and her local doctor were in such a state helped!!!! We then had to wait 2 weeks to see an ophthalmologist and a paediatric endorcinologist. Luckily, very luckily for us, the local paed confers with the endo. guy at every single visit (phone call). My daughter also has weekly blood levels done which include the antibodies and hromaone levels and also liver function tests (because of the high dose steroids she is on). One of the best things that happened for us was that the principal of our school spoke to all the year 8 children in my daughers year group and told them all about Graves disease, Thyroid eye disease and the effect of steroids (weight gain, mood swings, etc.), everyone has been so supportive since then and the horrible comments about big eyes and a fat face all stopped. In fact, we even had some text messages with apologies for some comments that had been a bit harsh before this. Now it is all out in the open, we are learning together and her fellow students don’t hesitate to come and speak to her or I about her condition which is great.

carla wrote:Yes, we are very, very lucky, although the 5 weeks wait before a diagnosis seemed like years at the time. I think that the fact that her levels were toxic and I was rung up and told to get her to the hospital in the next town asap because the lab staff and her local doctor were in such a state helped!!!! We then had to wait 2 weeks to see an ophthalmologist and a paediatric endorcinologist. Luckily, very luckily for us, the local paed confers with the endo. guy at every single visit (phone call). My daughter also has weekly blood levels done which include the antibodies and hromaone levels and also liver function tests (because of the high dose steroids she is on). One of the best things that happened for us was that the principal of our school spoke to all the year 8 children in my daughers year group and told them all about Graves disease, Thyroid eye disease and the effect of steroids (weight gain, mood swings, etc.), everyone has been so supportive since then and the horrible comments about big eyes and a fat face all stopped. In fact, we even had some text messages with apologies for some comments that had been a bit harsh before this. Now it is all out in the open, we are learning together and her fellow students don’t hesitate to come and speak to her or I about her condition which is great.

Carla…………..that is it; that long fine needle. I am glad to hear that she had the FNA (fine needle aspiration) for I feel it is important to know these things "Definitively!"

Lu Anne