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  • Ski
    Participant
    March 7, 2009 at 10:58 pm
    Post count: 1569
    #1073054

    You’re right, it’s not very common, but we do have several parents of young patients posting here. You may want to take a look for those posts and send private messages (or they may find you through this post). <img decoding=” title=”Very Happy” />

    There are a few differences when kids get GD, but for the most part the story is the same. Sounds like her doctor is doing well by you all.

    If your daughter ends up with symptoms of the eye disease, you should know that children typically get it in a less severe way, and it usually affects just the fatty tissue behind the eyes (instead of the muscles), so it usually resolves more completely at the end, even if they do get severe symptoms.

    Adolescent hormones can play with the thyroid hormone levels, so you may need to be really vigilant about getting blood tests. Make sure you share information with your daughter, because she’s going to be feeling particularly anxious about everything. Knowing what’s going on will probably help her quite a bit. Let her know she’s welcome to post here if she likes.

    Other than that, it’s pretty much the same ride as adults get. Stick around, ask any questions you like, we’re here to help!

    roxi5
    Participant
    March 8, 2009 at 1:53 am
    Post count: 1
    #1019642

    My 12 yr old was just recently diagnosed at Children’s Hospital with Grave’s. I am a registered nurse and also my sister was diagnosed in her 20’s (she’s 42 now) So I recognized my daughter’s symptoms and felt that she had Grave’s before she was diagnosed. My concern is that I don’t now of any other children getting this.
    Is it uncommon in children? <img decoding=” title=”Confused” />
    The Dr. put her on Tapazole and also Atenolol. Her heart rate at rest was 145. She is also not permitted to take gym class at school, not until her heart rate is in the 100-110 range. Even though I am familiar with this is there anything else I should know especially since it is my child with this and not an adult? <img decoding=:” title=”Question” /> thanx :!:

    amyl
    Participant
    March 8, 2009 at 3:41 pm
    Post count: 71
    #1073055

    Hi Roxi5!
    My son was diagnosed with GD when he was 15 but I’m sure he had it for at least a year (maybe 2 or 3) before he was correctly diagnosed. He misses a lot of school because he’s so sick. It’s tough on kids..they feel so awful but they don’t really look sick. My son is very lucky because his friends accept that he has limitations so they make accomodations for him when they’re playing sports. As a parent, it’s hard to watch your child be so sick for such a long time as the medicines aren’t very quick acting. My son was on Methimazole from April 2008 until Feb 2009. It was obvious he wasn’t going to go into remission so he had RAI on 2/17/09. We’re still waiting for signs of him becoming hypo. I hope your daughter goes into remission quickly.
    Take care!
    Amy

    hyperm
    Participant
    March 8, 2009 at 5:03 pm
    Post count: 435
    #1073056

    HI my sis was diagnosed at 13 <img decoding=” title=”Sad” /> (I was 24). She was monitored very closely and like your daughter wasn’t allowed to partake in any physical activities. It was hard for her (and us ) as she started menstruating too and the combination created a monster from a very soft and placid little girl.

    My parents were just very patient with her.She had 3/4 of the gland removed in her early twenties.

    Its such a shame for someone so young to have to cope with all of this.

    M x

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