Viewing 6 posts - 1 through 6 (of 6 total)
  • Author
    Posts
  • PAT1953
    Participant
    December 4, 2009 at 4:37 am
    Post count: 27
    #1018792

    How can that be? I thought the Methimazole was going to bring me some relief. My Dr. had to up my Troprol(generic) up to 50mg from 25mg cuzz my heart rate is worse(101 last night). This is really getting me down. I can’t wait until I do my RAI if I qualify(but I am nervous about the dumping). I’m so tired of this shakiness, nervousness, weakness.(I fell at work today, tripped over a stupid box and down I went). Luckily the fall just bruised me and hurt my shoulder a bit. I actually feel more clumsy with this disease. Is it possible the Methimazole will take longer than I thought? I yearn for feeling good someday. Thanks for listening. Patti

    Bobbi
    Participant
    December 4, 2009 at 5:45 am
    Post count: 1324
    #1067154

    Unfortunately, it takes time for most of the treatment options to work to make us feel well again. ATDs, like methimazole, start immediately to interfere with the production of new thyroid hormone, but the thyroid has stored supplies of hormone that are unaffected. Until those stored supplies are used up, the antibody-fed demand will cause thyroid cells to continue to release as much thyroid as possible and you won’t feel much difference.

    In addition, there’s no pill that brings back "normal" quickly. Even after we get to reasonably stable levels of thyroid hormone, we don’t feel "normal" until the body has had a chance to heal. And, yes, that takes time. My GP at the time told me that in her experience, I should expect it to take nine months AT normal levels of thyroid hormone, before I truly felt normal again. It didn’t take that long for me to feel much, much better, but it did take quite a while for me to feel completely well again.

    I do know how hard it is for you right now. And I hope you are able to start seeing improvement very soon.

    ely2009
    Participant
    December 4, 2009 at 2:15 pm
    Post count: 199
    #1067155

    Patti,

    I SOOOO know how you feel…I remeber it well. I was diagnosed in March (after several months of not knowing) and began methimazole and a beta blocker. My beta blocker dosage also had to be increased after starting treatment. It’s so frustrating to feel so sick and unlike yourself for so long. I had improved enough (less tremors, lower heart rate, better sleep) by the end of May that I was able to wean off of the beta blockers. I ‘d say it was July (about 5 months after starting meds) that I really felt normal almost all of the time. I’m on 5 mg of methimazole and my levels are all in the normal range. I feel "normal" almost all of the time- sometimes get shaky when I’m about to start my period or get too little sleep. It’s very hard to be patient, but so worth it once you’re there. I remember wishing months away – like "surely I’ll feel better by this time next month." I kept a journal with symptoms listed because it’s easy to dwell on not feeling perfect and forget that you’re actually progressing. I can’t believe how good I feel most of the time now – which I guess is s direct reflection on how TERRIBLE I felt for so long.

    I guess the moral here is hang in there – I know, easier said than done. But you really will notice improvements eventually.

    Good wishes coming your way.
    Emily

    PAT1953
    Participant
    December 4, 2009 at 6:03 pm
    Post count: 27
    #1067156

    Thanks you guys. It helps to get support for this awful disease. My eyes are really burning today. I’m using eyedrops but I’m feeling really down. I keep asking myself why me but I know it’s just life. Bummer.

    Ski
    Participant
    December 4, 2009 at 6:31 pm
    Post count: 1569
    #1067157

    Hang in there, you’ll get there ~ you’re closer than ever, having SOME form of treatment, and at least knowing what you’re dealing with. Try and look for the small blessings, and they’ll get bigger. Promise. <img decoding=” title=”Very Happy” />

    hyperm
    Participant
    December 4, 2009 at 6:43 pm
    Post count: 435
    #1067158

    Better days are ahead. It does take time but you will eventually start to feel the benefit. It may even be so gradual that you don’t notice it initially. Hope the RAI goes ahead xxx

  • Author
    Posts
Viewing 6 posts - 1 through 6 (of 6 total)
  • You must be logged in to reply to this topic.