Liz1967
    Post count: 305

    Tepezza, which is given as a series of infusions, does work. I have a friend whose TED course has been very similar to yours who had good results with it. It is very expensive, however, and may be a problem getting your insurance company to pay for it. If you are close to a teaching hospital with an ophthalmology department you could try going there. I have had courses of oral steroid for flareups years after my last surgeries that did work (I have had decompressions and two strabismus surgeries, 3 lid surgeries, thyroidectomy, orbital radiation and steroid infusions). Weall dread recurrences and they seem to be more common than they previously thought. I hope you find an eye group that can help you.