Liz1967
Post count: 305

Reactivation has been found to be not as uncommon as previously thought. I have a friend who is on her fourth recurrence and I have had it flare up at least once after lid surgery, after which all other reconstructive surgeries were “covered” with prednisone courses. Fortunately my flares were easily treated and mild, but others have not been so lucky requiring repeat surgeries. They have infusions of a drug called Tepezza but it is pricey. See an oculoplastic surgeon to monitor your course and treat if needed before damage is done. Of note, I had total thyroidectomy, steroid infusions, radiation to my orbits, bilateral orbital decompressions and still had a TED flare.