Liz1967
Post count: 305

Thyroidectomy does make it much less likely to get the eye disease, but it does happen. Having had TED and undergone multiple eye surgeries, my advice would be to find an oculoplastic surgeon who is very familiar with Graves. This ophthalmologist would be the one managing your care should the eye disease progress. This may mean travel to a larger city or a university based medical center, but experience with thyroid eye disease is vital. The most important decision you will make is your choice of ophthalmologist. This disease does its own thing and about all you can do is be patient and find the most experienced eye docs you can.