August 1, 2018 at 6:05 pm
Post count: 4274
Hello and welcome – thyroid eye disease can occur before or after your Graves’ disease is initially diagnosed and treated, although it’s more common that they occur together.
I’m not familiar with swelling specifically on the upper eyelid. It’s *very* common with TED to get swelling underneath the eyebrow area, or the upper eyelid can retract, or sometimes the actual conjunctiva can become inflamed.
I wish I had some insight on the pain – there *is* a condition related to Graves’ called pretibial myxedema that appears on the shin; the manifestation of that is usually a rash that resembles an orange peel, except that it’s red. Don’t be afraid to be the squeaky wheel until you find a doctor who can help you put the puzzle pieces together!