SueAndHerZoo
You are absolutely right about that. I, for one, was first diagnosed 6 years ago and read everything I could find and joined all sorts of forums to gather support and information. Once I became stabilized with Methimazole my life went back to my “before diagnosis state” and I no longer visited the forums much, if at all. I feel guilty for saying that because perhaps I should have continued to read and post and share that I was now “fine” but I really didn’t have much to say once I wasn’t being bothered by Graves any more. And honesty, I don’t think the people who are still suffering with it really WANT to hear from someone who is feeling great and can’t relate to their symptoms and challenges.
When did I join this forum? A few weeks ago when I came out of remission and started suffering with hyperthyroidism symptoms. I’m back on Methimazole and haven’t found the right dosage yet (will do bloodwork and see endo in about a week) but I hope to be able to put this behind me and forget I have Graves Disease within the next month or two. And yes, I will probably disappear from the forum at that time, unless I can find something useful to share with others.
So, good point. There are many, many people with Graves Disease that are living perfectly normal lives but they are not here talking about it. Only those that are struggling right now are here seeking to receive and share information and support. (of course, that doesn’t apply to the moderators – they have to stay very involved regardless of how they feel and I can’t thank them enough for that.)
So for those suffering right now (me included) please know that there IS a light at the end of the tunnel and this disease does NOT have to be a dark cloud over your head for the rest of your life. It only feels that way while we’re struggling to find the solution and some relief, but it IS out there. Patience and an optimistic attitude help a LOT.
Sue