Kimberly
Online Facilitator
    Post count: 4290

    Hello and welcome! We are fellow patients here, not docs, but a couple of thoughts that would be good for discussion with your doc on Tuesday…

    1. Keep in mind that it’s important for your doctor to base dosing decisions on Free T4 and T3 and *not* on TSH, which can remain suppressed for quite some time in Graves’ patients. Dosing off of TSH alone can potentially produce hyper/hypo swings.

    2. Some patients are VERY sensitive to small changes in Methimazole dosing, so you might discuss the option of alternating doses every other day. As an example, at one point, I was taking 5 mg of Methimazole 5 days a week and 7.5 mg two days a week. Definitely a weird dosing schedule, but that’s what it took at that point to keep my labs in line.

    All three of the treatment options have risks and benefits…the “Treatment Options” thread in the announcements section of this forum has two great links that go through the pros and cons. This board also has a search function (in the top right-hand corner of the screen), so you can run a search for “RAI”, “thyroidectomy”, “surgery”, etc. to read stories from other patients.

    Hopefully, you have a doc who will spend time with you and answer all of your questions on Tuesday as you make this difficult decision.