Kimberly
Online Facilitator
    Post count: 4288

    Hello and welcome to our forum! Wow, you certainly *have* been on a rollercoaster ride…I’m so sorry you have had to deal with all of this for the last few months.

    We’re fellow patients here – not docs – so we can’t give medical advice or interpret specific labs. Here are a couple of items, though, that might be good for discussion at your appointment tomorrow…

    1. This is the first I’ve ever heard of someone taking both Methimazole and PTU. Is there a specific rationale for this? Methimazole is generally the preferred drug, although the latest medical guidance notes that PTU is generally used for a patient experiencing thyroid storm, as it has the added benefit of inhibiting the conversion of T4 to T3, which is the more powerful and active form of thyroid hormone.

    2. Have you talked with your doc about the possibility of surgery as a treatment option? Although surgery is riskier on a patient who is hyperthyroid, there are precautions that can be taken (administration of beta blockers and potassium iodide) to reduce this risk. It sounds like your doc is aware of the fact that high T3 levels are one of the major risk factors for worsening of the eye disease after RAI (along with high antibody levels and smoking). Of course, surgery comes with its own risks, so this is certainly not a decision to be made lightly.

    Take care – and please keep us posted on how you are doing!