Hi suzismom. It sounds like you have a severe form of the eye disease, but there are many people on this board who have been through this and who have had the orbital decompression, eye muscle and eyelid surgeries that you’ll probably need, usually with good results. If you have specific questions about the orbital decompressions, email Jake, who has been through it all.
Best wishes,
Dianne W
NGDF Asst. Online Facilitator