Anonymous
Participant
Post count: 93172

Hi Erica,

Best wishes with the radiation treatments! I had them about 6 months after developing TED. I had to wait about 4 years to have surgeries because my ophthalmologist will not do any surgeries (unless absolutely necessary due to possible loss of vision) until the TED is in the cold phase ~~ in my case it took about 4 years for the TED to burn out. This of course varies from person to person.

Don’t let the idea of having several surgeries scare you ~~ each surgery is for a very specific area. I will hopefully be having my upper lids done this summer. There were some minor pressure changes in my eyes the last time I saw my ophthalmologist (December) and he preferred I wait another six months before having the upper lids done just to be absolutely sure that there was nothing new going on with my eyes. I trust his judgment. No sense in having surgery to only possibly need to have it done again!

Again, best wishes with your treatments and please let us know how you are doing. Feel free to email me!

Take care,
Donna