You were diagnosed in 98? So you’ve been living with this uncertainty for almost two years.. I am wondering if it ever gets better.. Everyone keeps talking about hot phase and I’m not sure what that is.. Does it mean that your eyes can keep getting bigger all that time (2-3 years)?Have your eyes gone down at all or still the same. You never had the eye program in the beginning at all? I’m so confused that I don’t know what treatment I should follow and I’m sure they’ll leave it to me. How do you pick your eye doc? You have a special one??? Sounds like he is a neuro type.. Maybe my neurologist could tell me about one.. Or am I wrong in noticing what you said??Have you gone hypo??,now that you’ve done the RAI treatment. I’m kind of weary about that one since it’s radiation and someone that I read said everyone but her were so covered up and so on.. I’ve read in the mail (from someone) that the surgery is faster.. I don’t want to go hypo.. Seems there are more mental problems etc with that. Including the weight problem. So much to think about.
I appreciate you letting me know all you’ve been through to help me understand this crappy disease..Now my sister is worried that she’ll get it.. Is it heriditory???
regards. Ricki