Anonymous
Participant
Post count: 93172

Reply to Christina:

In reading your post about being on steroids, I have a couple of questions. Did you notice any improvement in your eyes after the month?
What other side effects, if any, did you feel?

My neuro-opth put me on steroids 3 months ago, 60 mg, for 3 weeks. He was terribly worried about causing ulcers. That was not a problem. My major problem was a continuous headache from day 1 and constant vertigo-like dizziness. Plus I gained 5 pounds and became a pms-like screaming
beast. I tried to stick it out, but felt too sick, so quit after 10 days. Of course, not long enough to affect my eyes. So now doc is considering radiation depending on outcome of next field vision test. He’s very conservative with treatment unless vision becomes impaired, which I think it’s beginning. I’m just curious as to what side effects others have experienced. I wonder is there’s another steroid besides prednisone that I could tolerate?

Sorry to be so long-winded!

Renee