Anonymous
Dear grneyedlady,
Thank you so much for your response and for your understanding. My TED was also diagnosed last July and I’m obviously in the “hot phase”. I wish my eye MD would allow me to use Lotemax at least on a prn basis as it did relieve the inflammation. He is insistent that I not use either oral or topical steroids at this point. I can barely stand the discomfort especially at night. I’m trying to use the Restasis drops twice a day but the burning caused by these drops is severe. I don’t mean to be a ‘winer” s it sounds like you’re also experiencing much discomfort and are confused, in a sense, also re the different treatment options. What part of the country do you live in? I wish I could attend a support group for Graves’s Disease patients but there doesn’t seem to be one in the Milwaukee area. I plan to try to start one. It is comforting to know that others are experiencing the same physical and emotional stress that I am. Hope we can keep in touch. Nina