Post count: 93172

    Claire, you are not alone in your struggle to make this decision. I am also on a very low dosage of Tapazol and seem to be doing fine on that. I have no symptoms, my concern is that being on this drug long term is probably not good for me either. I was diagnosed in March of 2006. I don’t post much because there are people with very serious symptoms who are struggling with real issues in their journey with this disease. Just wanted you to know that there are others our here that can relate to your post. This is a wonderful site for information and there is a lot of information on the internet as long as you can figure out what is good information and what isn’t . Best Wishes Claudia