Anonymous
I experienced something similar. Although I was never “stable” at a particular dose of replacement immediately after RAI, my dose was increased, and then lowered and lowered and lowered. I was finally taken off replacement altogether for a period of, perhaps, three months or so, and then had to go back onto replacement hormone, with gradually increasing doses over time. At the time, I nicknamed by thyroid “T-Rex”.
Possible Explanation: remember that the problem is caused by antibodies. The numbers of antibodies can increase or decrease for no well-understood reason. We usually think that RAI has gotten rid of every bit of thyroid there is. But that is not necessarily true. There can be enough thyroid tissue remaining in the body for an increase in antibody action to cause changes in our replacement dose needs or make us hyperthyroid again.
It must be very frustrating for you right now. I hope you and your doctor can get things under control quickly.
Bobbi — NGDF Online Facilitator