parentwithgrace
    Post count: 8

    Dear Nancy,
    Thank you. Your math is correct- she is now 12. I would very much like a copy of the bulletin you mentioned — I will email you so you can send it along to me. I also would like to be in touch with other parents supporting the needs of their children with graves. I appreciate any advice, support and insight that can be offered. I feel a great responsibility to do it right for my child. She has a long road ahead and I want to give her every chance to be well. Thank you again.