Post count: 1324

    First off, advice could be different if your mother is suffering from the thyroid problems as well as from the eye disease. You spoke exclusively about the eye disease, but when you mentioned depression, anxiety and nervousness, those sound like issues most often associated with thyroid imbalance. So one suggestion is to get those thyroid levels checked if they are not being monitored.

    The eye disease can be devastating. If she is "only" (and I dont’ say that to minimize the problem) suffering from that, the depression might be addressed by seeing a psychiatrist for an evaluation. There are medications some people take (even when their eyes are not involved) to bring back quality of life.

    She needs to know that the eye disease usually burns itself out in 18 months to 3 years, so she might very well be at the end of the horrific part sometime soon. One of the moderators here has had over 16 eye surgeries, so there is familiarity with how awful a siege someone can go through. But there comes a point in time when the bad changes cease, and the problem can be fixed. The folks I know from this board who have had multiple surgeries for the eye disease all look terrific to me. I know they look different than their image of themselves, but the surgeries can work to minimize the distortions caused by the eye muscle enlargment.

    As for something more immediate: if she would tolerate it, take her some comedies to watch on her TV. There was a time when I was feeling very depressed by the disease – its length, the eye complications, etc. — and I put comedy movies on to watch. Everything that made me laugh, made me feel better. I must have watched one moviea dozen times or more. It always made me laugh, and the laughter always made me feel better (both physically and emotionally). It does not trivialize the ordeal to seek out laughter: it is a life saver in my opinion.

    Bobbi –Online Facilitator