[ColoradoRN]

#1060487

Just needing advice or reassurance.

I had a TT and parathyroidectomy last Monday. I’m on 137 Synthroid. Seems like I started feeling worse and worse every day. High heart rate, dizziness, weakness. I did not take the Synthroid yesterday or today. My surgeon is out of town , but her PA has advised I restart half dose for the next 2 days.

Has anyone had this problem? I still feel bad and shakes, worse than I did before surgery, scared to restart Synthroid…..I did call my Endo today to see what she recommends, but today is her day off.

[Kimberly]

#1182915

Hello – Hopefully, one of the members of our TT club will check in shortly.

Did your surgeon leave an alternate contact person for emergencies? If not, hopefully the endo will get back to you quickly. And in the meantime, it seems reasonable to follow the PA’s advice.

Take care!

[snelsen]

#1182916

I imagine you have heard from a caregiver by now. I do wonder, if you did have a parathyroidectomy if you know how many parathyroids were removed. You need to be followed VERY closely for this situation as well, until you fully understand the surgical procedure, and what it means to you. Generally, they are not removed with a routine thyroidectomy, but carefully avoided, so can remain in place. Just wanted to mention this. I am sure you are on top of all this, but want to be sure!
Do write again, hope you do feel better when your Synthroid dose is regulated for special you! Your symptoms are hyper symptoms, and although there is not much thyroid hormone left to circulate after thyroid removal, there IS some for a few days, so that may have been what has been happening to you, and why you are having the experiences you are having.
Shirley

[ChristinaDe]

#1182917

When I had my TT done, my surgeon warned me that it was possible that I could experience a rough patch for anywhere from a few days to a few weeks following surgery – and that if I was going to it would probably begin in the first week or two after surgery. He said that sometimes removing the thyroid causes a “spillage” of thyroid hormone into the body (and is why they try to put people on those iodine drops pre-op, to try to avoid it or decrease it somewhat). He also said what Shirley said, that there is some hormone resting in other parts of the body that may come out to play and make you feel a bit hyper for awhile. Despite all that, he did have me start Synthroid right away (but kept me on my beta blocker until we sure that I had made it through that stage ok).

In my case I didn’t experience the big spillage (I guess the pre-op drops worked)…but I must have still had some hormone floating in my body because I felt great initially on the 100 of Synthroid and then had a BIG crash at a week 3…the same time that they expected the old hormone to be used up. So they increased me then and things went much better from there.

In other words, it doesn’t sound overly surprising to me considering where you’re at. But it does sound pretty uncomfortable, so you’re right to check in with your medical team. They can check your labs, treat you symptomatically until the heart rate comes down, etc.

Are you taking calcium after the parathyroid removal? Mine weren’t removed, but they were irritated and sleepy and the first calcium med (TUMS) I took for that didn’t work because I was also on GERD meds – so I had to switch. Just something to keep an eye on since I had some ridiculous symptoms before I figured that one out!

I hope you feel better soon…maybe you’re feeling better already?
Christina

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