[raristy]

#1060425

My daughter was diagnosed with Graves at 12. She had been struggling with this disease for at least 3 years prior to diagnose (the doctors just couldn’t figure out what was going on, she was even misdiagnosed with ADHD). She had TT when she was 13. It’s been a long road, but I think a finally her Synthroid dosage is optimized .

While symptoms have greatly improved since TT, I observe a time lag in her thinking process, some cognitive symptoms, nervousness and some traces of GD. She is getting ready to take standardized tests, yes college is now in the horizon. She does reasonably well in tests (after all GD has caused, it really is a miracle and gift from God) that are not timed, but if time is restricted ishe might not have time to finish all the questions.

I know Dr. Scott Rivkees mentioned in one of the GD Foundation talks/videos that he’s observed in children that even after treatment some GD symptoms prevail. Is there a study or written documentation on that?

I know she is a good candidate for extended time in standardized tests; however, since GD in children is not as common as other conditions the test organizations are familiar with, I might need to inform them and provide additional information.

Please let me know. Thanks a lot.

Rosa

[Kimberly]

#1182540

Hello – This is a great question, but I have not seen any specific research on this topic. I will definitely keep an eye out for more info! In the meantime, this bulletin from the GDATF on students and Graves’ might be of interest:

(Note on links: if you click directly on the following links, you will need to use your browser’s “back” button to return to the boards after viewing, or you will have to log back in to the forum. As an alternative, you can right-click the link and open it in a new tab or new window).

http://gdatf.org/about/about-graves-disease/patient-education/students-graves/

For those who haven’t seen them, the videos from Dr. Rivkees at the 2011 GDATF conference and from Dr. Gottschalk at the 2012 conference are great resources on children and Graves’. You can find a list of GDATF videos here:

https://www.youtube.com/user/GravesAndThyroid/videos

Take care!

[snelsen]

#1182541

Hi, getting extra time is easily done. I did it for two my three kids in college. A letter from me sufficed, but a letter from the doc is better, I think. My kids were SLOW, but got the information if they could go at their own speed.

And I think you should definitely do this. A big stress reliever, just to know the timed tests were not hanging over her head.
Shirley

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