[mari]

#1060135

i have had 15 radiation treatments…. then i had my thyroid removed, went into shock cause calcium was so low….. then had 2 orbital decompressions… which my eyes are not bulging so much any more…. then they put prisms in my glasses to align my eyes…. didnt work and im severely crossed eyed right now and going for another surgery on the 19th of this month….. does this nightmare end…. is there light at the end of the tunnel here…. im tired of all this….
mari

[Caffer1962]

#1180671

Hi Mari, I’m so very, very sorry about what you’re going through. It’s so easy to feel very alone when suffering from Graves’ disease. I start a 12-week course of IV steroids tomorrow to try and stop the progression of the eye disease. It’s like being on the roller coaster ride from hell. All I can say is that there is alot of support here on this forum and some good information. I wish I’d found it when I was initially diagnosed. Since my eye disease began, I’ve had to go on anti-depressants and anti-anxiety medication. I didn’t want to get out of bed in the morning and still don’t like looking in the mirror. If only there were more studies. Keep posting and if you want, feel free to PM me your email address.

[mari]

#1180672

i was taking high doses of steroids while i did my radiation… it made me crazy… mean. i felt angry all the time… not to mention the terrible weight gain and bloating.. im off them now.. but i dont feel any better then when i did have a thyroid. im hoping this will be my last surgery for awhile and give me a break…. this GD snowballed so fast on me…. like getting hit by a mack truck. i also been hospitalize for pancreatis i dont know if one has to do with another….thanks for the encouragement
mari….

[Raspberry]

#1180673

Mari, I will pray that you find the best doctors and they perform to the best of their abilities for you. You have been through way more than any person ever should. Your situation shows that Graves’ really is a very serious disease and I wish that the medical community as a whole took it more seriously and it wasn’t hard for so many of us to find the right treatment without so much effort. I’ve often read that the strabismus surgery (that’s the one you are having?) is one that is often the most successful with the little recovery time. Please keep posting and let us know how you are doing.

[mari]

#1180674

thank you for your prayers, they are greatly appreciated. yes that is the surgery i am having… i sure hope it will give me my site back. thank you for your encouragement… people don know its a task everyday for me…. but i keep on trying….

[Kimberly]

#1180675

@Mari – We have had other posters here who have had great success with strabismus surgery, so hopefully, they will chime in here.

I would suggest editing your above post to remove your e-mail address, as you don’t want spammers to get a hold of this private information!

This forum has a private messaging system to allow posters to communicate directly with each other without exchanging e-mail addresses. You can send a private message to another poster by viewing one of their posts and clicking on the PM icon that appears underneath their screen name. The system will “ping” whatever e-mail address the other person used to sign up to let them know that they have a private message waiting. (You have to be logged in to the system in order to view your private messages).

If you need to edit a post, when you are logged in and looking at that post, you should see an “edit” button that will allow you to make changes to the post.

Wishing you all the best on this next phase of your journey.

[Author]

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