[kingzito]

#1059660

Hi,
Does anyone else have it or am I just one of the lucky ones. I’m considering going to a dermatologist if anyone thinks it can help. I had the bad itching and rash over summer of 2012 – the itching started in late May ’12. I was finally diagnosed with Graves in Sept. and went on MM. After developing an allergic reaction was taken off that and put on PTU.
I swung hypo on MM before the switch and after being on PTU my levels were still hypo just not as severe. That MM is like bleach! Then next dosage of PTU was too low and my levels began to rise. However, I was taking the pills just twice a day. My Endo put me back to 4x50mg in the AM/PM and 2x50mg at lunchtime. After 7 weeks of this I saw him yesterday. He seems to think my thyroid is correcting itself and has me on a 3 day hold of PTU. On day 4 I will go to 2x50mg of PTU three times a day. Less pills makes me happy. I pray that in 6 weeks with my blood work/labs I will show some stability.
However, he doesn’t know top much about Pretibial Myxedema.

Any suggestions out there? I wear compression socks everyday. My shins – or the muscle over the tibia has the orange peel look and it’s hard. I read that is from protein deposits. I do have some Triamcinolone Acetonide cream given to me by my primary care physician for the itch the MM caused and it is recommended online to help with the Pretibial Myxedema. I guess ultimately I’m wondering if a dermatologist will really help. I have insurance but my medical bills are adding up.

Thanks!

[Bobbi]

#1176593

I’m one of the folks who “won” the trifecta (thyroid imbalance, eye disease and pretibial myxedema). I went to a dermatologist, and, over time, the skin on my legs cleared up.

Wishing you good luck,

[kingzito]

#1176594

Thanks!
Did the dermatologist recommend any cream for your legs? What’s “over time?” A year? I’m not looking to win any beauty contests…

I, too, have the TED. On a scale of 1-10 my eye doctor said it’s a 2 but in pictures from two months ago it was raging like a 7. I looked insane! Now I’m just puffy eyed, moreso in the morning.

Thank you for responding!

[Robboford]

#1176595

Hi kingzito,
I am another of those “lucky ones”. I control mine with Antroquoril (I think) cream. I will check the name over the weekend and get back to you. Although, my GP is not happy with my continued use, my Endo is happy for me to use it if it is helping. Not many Doctors are familiar with it, I actually had to suggest it to my medical team and then it was Endo who actually confirmed it. I am a bit of a freak show when I go to my Endo or Opthalmologist they all ask if it is ok if their colleagues have a look at the rash so they can it in real life. I will be back in touch over the weekend.
Cheers
Debbie (A.K.A. Robboford)

[Bobbi]

#1176596

My dermatologist gave me a regimen of using moisturizers (two) prior to spreading a prescription strength cortisone cream on my legs. She told me that she felt the use of the moisturizers helped the cortizone cream to penetrate better. And, I honestly do not remember how long it took for the raised,thickened skin to go away. That was about 14 or 15 years ago. The problem with the cortizone cream use, however, is that over time it can thin the skin layer, allowing for infection to set in. I had to go on antibiotics at one point due to that problem.

[kingzito]

#1176597

Thanks everyone.

I have an appointment with a dermatologist end of next week.

At one point I had to see a sleep specialist because my GP thought I had apnea. This was before I had the Grave’s diagnosis and went on medication. The sleep doctor asked to feel my thyroid – she said she knew of thyroid disorders but had actually never felt one that was enlarged. Kind of like your rash story – at times I feel like a case study for other doctors! Oh well, if it helps anyone with this odd condition then it’s ok with me.

[Author]

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